5 Yo Daughter W/ Strange Stomach Symptoms

Updated on March 23, 2007
A.W. asks from Maryville, TN
4 answers

Off and on, my daughter will complain of stomach pain. One time it turned out to be a bladder infection, so I'm a little hypervigilant when she says her belly hurts. This round has been going on for about 3 weeks. The pain is not constant, and seems to vary from mild (annoying) to pretty bad (she'll clutch her belly and bend over). She has no fever, vomiting or diarrhea, no headache or other symptoms. When I ask her where on her belly it hurts, she draws a circle around her belly button, but says sometimes it's all over.

I took her to the doctor last week, and we x-rayed her to see if she was constipated (sometimes that happens with her), but she's not. The doc then tried a week of Pepcid to see if it's over-production of acid, and it didn't help.

I'm taking her back in today, and I suspect the doctor is going to want to do an upper GI or something like that (poor kid). I wanted to write to you Mamas to see if you have gone through anything similar and might have some ideas for what it could be!

I'm wondering if it's not a gluten intolerance; my father has celiac disease, and the cramping she describes could be the gluten intolerance. SHe also has some of the more out there symptoms of the disease like geographic tongue (back in October, she developed flat spots on her tongue; turned out to be geographic tongue, which is weird but not problematic), and enamel deficiencies (she has 2 back molars that are just not good; we sealed them, and she got cavities around the seal, and the enamel is just very weak). I think I'm going to try to get the doctor to either do a biopsy (the sure test for celiac disease), or try a gluten-free diet for 30 days, but -- I hate to have it not be gluten and have her keep hurting for another month!

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So What Happened?

The doctor did a blood draw today to test for celiac disease. If the test turns up nothing, I'm going to take her in to a pediatric gastroenterologist (that's a mouthful), and I'll request a biopsy to double-check. My father went through all kinds of uncomfortable testing, and said that the scope for celiac was the least difficult, since he slept through it; so we'll start there, and then move on if necessary. Thank you so much to all who responded!!

More Answers

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M.B.

answers from Dallas on

Your daughter's symptoms are identical to those of both my sons (including the teeth problems) who weren't diagnosed with Celiac until they were 8 and 11. I ended up using enterolab as it's a non-invasive test that can be done at home:
www.enterolab.com
It's also very important for you to be aware that if her teeth problems are with her baby teeth, then YOU also need to be tested because the enamel defect on the baby teeth is due to the nutritional deficiencies of the an undiagnosed celiac mother (like myself) because the enamel is formed before the baby is born.

And, yes the biopsy is the current gold standard for CD, but most docs won't run it if the blood tests aren't positive and for some folks, those can have false negatives (like myself). So, if you do go the conventional route and the results are negative, I would suggest the enterolab test before going on the diet. You will, unfortunately, do your daughter a dis-service by not getting the positive test results (or at least knowing she has the genes that pre-dispose one to CD) before starting the GF diet for several reasons:
1. When she's older, she's not likely to stick to the diet without you being able to point to the test results (I know this from experience with my now 14 year old).
2. Even if you get positive results on the GF diet, if she later has other GI issues, some GI doctors would require that she go on a gluten challenge later to get the diagnosis. That is cruel in my opinion, but still done by many folks.
3. It will also be harder for you to convince yourself to keep her on a 100% GF diet (which can be difficult) if she does do well on the diet. It's important to have the results to re-enforce even to a concerned mother, that the problem is real.

I wish you well and feel free to contact me if you have further questions.

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S.M.

answers from Dallas on

I think you should take her to see a pediatric gastroenterologist if you haven't already. Something is going on with her and I know how heart tugging it is for the mother to see her child in any discomfort.

Try Drs. Argao, Brown, and Whitney at Digestive Health Associates of Texas. ###-###-####

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J.S.

answers from Houston on

A friend of mine (he was in his late 20's) had similar symptoms. It turned out to be diverticulitis/Crohn's disease or something like that. It can be controlled with meds...well, at least with my friend. I also thought it happened with age, so I don't know. Sorry to not be of more help. Good luck with everything! Hope she feels better soon!

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L.L.

answers from Dallas on

Hello,

I thought I would just share with you the experinecs that I had growing up. When I was in third grade I have sharp pains in my stomach and my teachers just always thought I would make it up so I could get out of school work and go home or to the nurses office. Finally in the eigth grade I was sitting across from my mother and brother at a school cafeteria and my mom saw me go thru the whole thing. I was having seizures and they started with an ora in my stomach. My stomach would cramp and I would get very hot and request a cold rag to put on my stomach and head. I never had fever with it but I was so sleepy afterwards. I hope this is not what is going on with your little girl but they thought my was to much acid and put me on a blended diet. So they did the upper gi and no luck either. Just keep your eyes on her and she how she reacts before and all the way thru the pain. Hope you get help soon of what is wrong with her.

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