Allergic to Soy-which Formula to Use? Anybody Else Have This Problem?

Updated on September 05, 2008
H.B. asks from Denton, TX
18 answers

I'm asking this for my little brother--his son is 10 months old and at about 8 weeks his pedi put him on soy formula because he was spitting up so much and having bad gas issues. Well by 4 months old they realized something else was wrong...he broke out in a horrible rash and nothing they did made it go away. They took him to an allergist and it turned out he was allergic to soy. So they switched him back to similac sensitive and the rash cleared up. Last week it came back...my brother noticed that his formula has soy oil in it and he checked the ingredients on every formula they had at Target...they all have it. I asked him if there was anything else he could have eaten that might have had more soy than normal that could have caused it and other than bread, which he's been eating for awhile now, my brother couldn't think of anything. I've also suggested they go back to the allergist and have him tested for other things.
Has anyone else dealt with this? What is the best formula to use? Should he just go ahead and switch to cow's milk or is it too early still? He is going to call the pedi tonight but he probably won't hear anything until tomorrow so I thought I would put it out there and see if anyone else has any info...

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So What Happened?

The doctor took my nephew off formula and put him on whole milk with vitamin supplements. They are going to keep watching him and meet with the allergist again to make sure there is nothing else that could have caused the reaction. Thank you all so much for your help and suggestions; I forwarded all of them to my brother so that he has some other options if the whole milk does not work out.

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R.

answers from Dallas on

We had the same problem and Nutramigen is what we had to use. Ask the doctor for samples and I wrote directly to Enfamil(on-line) and they sent me some great coupons specifically for Nutramigen. HTH

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T.M.

answers from Dallas on

My son is allergic to soy. We gave him Enfamil. We used Dr. Browns bottles which helps with gas and spit up. However, he did have issues with the powder. So we had to buy the cans of already made which were over $4.00 a can. So it is kind of expensive but well worth it. Another thing you can try is goat's milk.

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K.D.

answers from Dallas on

Hi H.,
My son has problems with soy, so the Dr. put him on Nutramigen. After a few weeks, and another reaction, they now think he is also allergic to cow's milk. He is now on a crazy expensive formula called Neocate which is an amino acid based formula for kids with multiple allergies or intolerances. If his Dr. puts him on Neocate give me a shout and I will tell you where we get it for cheaper ($50.00 per can @ pharmacy), and how we are working with insurance to pay.
Good luck, it is a tough experience! I hope the baby feels better soon!

2 moms found this helpful
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E.P.

answers from Dallas on

Hi H., I haven't had a child with this problem, but our grandson who is 12 years old has this problem as he couldn't take breast milk and they tried baby formula and found out that he couldn't take this either and tried soy milk and he couldn't take this either and had to put him on rice milk and he is still on this today. I'm not sure if you can get a formula for this or if you have to buy it in containers already made up and its sold as rice milk and of course its made from rice the same as soy milk is made from soya beans. You may have to go to a pharmacy to see what they have there or you can try a super market and see what is there, but may have to go to the pharmacy. It could be that the child is or has trouble with extra iron in the formula or some other susbtance. My wife and I are foster parents and have had several babies over the years and we have found that some can't take regular formula with extra iron and have to go to a basic formula and a lot have added extras beside iron and will need to look at this as well. We have been fostering children since 1991 and have had between 50 to 60 kids in that time some as emergency for a few days to medium term up to 2 years till mother gets her act together and we have now gone to long term as the 7 we have now will be with us from now on. We have 7 foster kids at the moment and the 2 oldest will soon be 16 on in Oct the other in Nov and the youngest is 5 and is in prep this year. I live in Australia and have been here since 1972 and not as familar with the formula's there though I grew up in the Krum area and did all my schooling there. I hope that this is helpful for you and maybe give the rice milk a go. Ed

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M.B.

answers from Dallas on

Soy oil typically doesn't cause much of an allergic reaction as the majority of the protein (which is the source of an allergic reaction) has been removed. It is quite likely given the past reaction to cow's milk that cow's milk is also an issue, so I don't think switching to that is an option. I think he'll have to go the route that someone else suggested to use one of the super hypoallergenic formulas where the proteins have been broken down - Similac sensitive is only intended for babies with lactose intolerance. That MIGHT resolve the issue.

Also, rashes can be due to a reaction to gluten - i.e., it might not have been the soy (particularly given that's it's soy oil) at all, but the introduction of solids that triggered the problem - e.g., something like Cheerios or the bread - it can take a while for the antibodies to gluten to reach a point that they cause the rash (this is likely a delayed food reaction and not an immediate one). The most accurate test for gluten (and they also test for soy and diary allergies) is available from enterolab: www.enterolab.com
It's a very simple stool test - no doctor's visit, no blood draw - they send the kit to your home with directions and you overnite it back to them and get results in a few weeks. Doing this test now will save LOTS of grief and doctor's visits.

Also, a quick review of the ingredients of Similac Sensitive shows that the main ingredient is corn. Corn is a very common allergen and could very well be yet another and perhaps most likely culprit since it was the primary food that child was consuming each and everyday. It is also not at all unusual to have allergies to many foods, especially when they appear at a very young age.

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M.C.

answers from Dallas on

H.,
Has your brother tried to put his baby back on the regular formula? I am not sure I completel understood all that you said, but if regular Infamil or other brands, that are non soy based, do not have the soy oil, I would try to put him back on those formulas to see if he is able to handle them now. If he has not tried the 'regular' formulas since the baby was 2 months old, his digestive system my be strong enough to handle it now, rather than when he was a newby. Personally I do not think that regular milk will hurt the boy, but I would talk to the pediatrician and see if you might need to by the infant vitamin drops to suppliment any of the vitamins that he may not get from the regular milk, as opposed to the formula. I hope you find a good solution for your brother and his baby.

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A.S.

answers from Lubbock on

My peditrician started my son out on cos milk at ten months he still spit up but that is just the norm for him.Most pedis say to start at one year but my son had no prob starting at 10 months

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C.P.

answers from Dallas on

Hello H.,

My Godson had the same problem and was on NEOCATE for several months. He was allergic to soy, mil, wheat, nuts, ragweed. He's 5 now and only his soy and ragweed allergies are still around. they definitely need to test him for other allergies. you may be able to get neocate online cheaper. I think directly through the manufacturer. (just calculate if it's still cheaper after paying the shipping). Good luck! ~C.~

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M.C.

answers from Dallas on

Hi H.,
Skip formula altogether if there are still problems. cow's milk is not good for his tummy, unless it is organic and you get it from a farm, hence no hormones, pesticides antibiotics added to the milk like the grocery stores have. Goats milk is also very close to mothers milk and is easy on the stomach and digestive system. I nursed my son but tried nursing my daughter and was producing enough milk, so me holistic friends and great grandma had suggeswted goat's milk. And she was fine. No problems. You can get it from walmart or the other grocery stores. It does not contain the hormones etc.... hope this helps. any questions you can call me. ###-###-####.

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C.

answers from Dallas on

My son is allergic to soy. He is now turning 7 this month. He was placed on Nutramigen. It was (and still is) very expensive. The pediatrician told me to be sure and ask for samples every time we came in to help out with the costs.

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P.J.

answers from Amarillo on

both my girls were allergic to soy...try nutramigen. I'm also a NICU nurse and that is what we use if they are allergic to soy

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J.C.

answers from Dallas on

You can try Goat's Milk, that's what I used for my boy who had soy and dairy allergies. I've also used Rice and Almond milk. You'll want to make sure he's getting all the other nutrients, so they may want to supplement his diet in other ways. If you want you could send me your mailing address privately, and I can send you a sample of supplements that should help (as soon as I get them in, they're on back order). Best wishes for your nephew and family.

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F.C.

answers from Tyler on

Try goats milk. My son was allergic - or intolerant - to all of the baby formulas (and cows milk) (20+ years ago), so the doctor suggested goats milk. He didn't have any more problems with vomiting or rashes once we made the switch. He outgrew his allergies/intolerance to milk a little after a year.

Good Luck!
Frances

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J.L.

answers from Dallas on

As mom to a dairy protein allergy baby, I became very aware of soy ingredients as well since many times a dairy allergy and soy allergy go hand in hand. He needs to also check the ingredients label on every baby wash, shampoo, and lotion he puts on his child as soy is in many products. It sounds like the baby is breaking out in eczema. I cannot remember, but the California baby line might be soy free.
http://www.californiababy.com/eczema-sampler.html

In addition to diet, I made sure to wash my baby every night with mostly water to rid his skin of irritants and then would slater him in Eucerin. It really helped keep his eczema in check. I'm sorry to say we breastfed and I was on a strict diet to control his allergies, so I cannot offer advice on the better super hypoallergenic formulas. But, I can say that by 14 months my child grew out of his dairy allergy. Good luck.

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K.H.

answers from Dallas on

My son has similar issues...he is milk soy protien intolerant. the allergy is not to the soy or milk itself but a protien present in both. my little guy has been on elecare which is an elemental formula that has all of the protien broken down. It is the same as neocate but a little less expensive. I would definetley suggest seeing a pediatric gastro doctor...my dr. has told us that 95% of babies grow out of this by their first birthday. We are going for allergy testing too. I would suggest trying similac alimenten or enfamil nutragenim while waiting for an apointment with the GI doctor...both have about 80% of the protien broken down.....if he shows improvment it is probably the milk/soy protien intolerance. Good Luck!

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M.P.

answers from Dallas on

Hi H....I'm a mom to three and grandmother for seven (lots of experience). My third child was allergic to all formula and I couldn't bf. My pediatrician told me to get some Carnation dried milk and when I tried it, it worked. He loved it and it was very cost effective!. The dried milk contained all the vitamins and nutrients needed. I don't remember it containing soy. Hope you have success!
M. P

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S.D.

answers from Dallas on

I would try fresh goats milk watered down a 3rd to keep the baby from constipation its the closest to a mommys milk there is. Also you can try rice milk formula. The reason I know is because we were just though this with a friend of mines baby. Hope it works for your brothers baby too.

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J.S.

answers from Dallas on

I think there might be some serious hypoallergenic formulas that are available by perscription only that do not contain soy. I would get your doc to write a RX for one can and see if that helps. With the soy allergy, though, start getting used to reading food labels in great detail! I just discovered I have soy intolerance over the summer, and I never realized how many foods soy is in. Dr.'s usually think it is no big deal, but painful, uncomfortable gas is a big deal!

1 mom found this helpful
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