Can You Share Your Experience/knowledge of Gluten Intolerance?

Updated on May 17, 2011
M.R. asks from Olathe, KS
4 answers

I have lived with chronic pain, fatigue etc for well over 10 years. I was diagnosed with fibromyalgia 9 years ago. I have seen various doctors, PT, Chiro, pain specialists, yoga with little improvement and have done a ton of research on my own searching for solutions. I know I have been tested for celiac and it came back negative, but I have also read you can have a negative test and still be sensitive to it. Is this correct? In my mind I think, well just don't have any gluten for a few days and see how you do. However, this is easier said then done. When I was breastfeeding my daughter she had a dairy soy intolerance so I was on an elimination diet, and stuck to it. but it's weird, I can make the sacrifice for my child, but when it comes to my health I'm just not as strong willed :( I've tried eliminating the refined foods too (overall I'm a pretty healthy eater, but I definitely have a sweet tooth) but when I'm having a bad day I know I'm treating my pain with the quick fix foods that give you a little boost and then a huge crash later. It's a vicious cycle. I'm 29 weeks pregnant with our second child and while I tend to see some improvement when pregnant, this time has been a rougher go around. I am absolutely dreading the lack of sleep that comes with a newborn. My symptoms triple when I don't get adequate rest. I know I will have to ask for more help this time around, b.c last time I tried to do it all on my own and I paid for it. Anyway, I would appreciate some feedback on your experience with gluten sensitivity. When you've tried just about everything, you get disheartened that there will be anything out there to bring you relief but I'm still searching and still hoping for some improvement. Thanks!

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S.O.

answers from Chicago on

I was diagnosed a few years ago with Celiac. It took over 20 years to find out what was wrong so I understand where you are coming from. I pretty much figured this is how it is and I would just have to live with it. Since i have been gluten free I feel so much better I don't even think about cheating on my diet. For me it is worth it. I have so much more energy. I am not bloated all the time, I have lost weight because my body is able to absorb the right nutrients now. I am not randomly throwing up. I threw up so much it was kinda a joke around here. My hair is not thinning any more and my horrible itchy skin has cleared up. There are so many gluten free foods, websites, books etc..now it is not as hard as you may think. The hardest part is reading label after label after label but more food is being labeled gluten free so that will help. It may worth it for you to try it. Some people who have intolerence and not Celiac are able to tolerate some gluten. Good Luck. I hope you feel better.

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J.A.

answers from St. Louis on

I have a cousin who is gluten intolerant and it was really difficult to actually diagnose.

This type of problem really is up to you though- in the long run. There isn't going to be a magic pill that fixes all your symptoms. If this is what you have, you will have to stick to the diet to make yourself feel better.

Make yourself a list of everything you shouldn't eat and then just try it for a couple of weeks. Now is better than waiting until the baby is here. Make sure you are getting enough calories and be good to yourself!

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J.T.

answers from New York on

You can be tested for food intolerances. I'm not sure how to find a doctor in your area who does it but I saw a nutritional MD who did it for me. I actually didn't go in thinking I had a food intolerance bc I never have digestive issues. I was just tired a lot and had headaches. Turned out I'm highly gluton intolerant as well as dairy. I went off and felt SO much better very quickly. It's not all that hard to cut out wheat short-term. Just substitute rice or potatoes. When you need a "fix" try chips and guac if you like that or french fries etc. And I still eat chocolate.

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A.G.

answers from Albuquerque on

My s-i-l has celiac's. She had a negative blood test but went in for further testing with a differant dr and that dr diagnosed her as having celiacs. So im going to say its probably possible to have a negative blood test but to actually be sensitive to it. It has been 4 years since she was diagnosed. I know she really struggles with eating right sometimes but she gets thru it by reminding herself how junky she feels when she eats something she shouldnt. A lot of places now carry some variety of gluten free foods. Some taste pretty good, others not so much. my s-i-l is a big fan of the gluten free bisquick. there are also lots of good cake mixes out there, i think Pamelas is one that has a yummy choclate cake that tastes no differant than regular choclate cake.

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