After 2 years of battling an answer we finally found out that my 5 year old has celiac disease. Her diet has been going very well for her and now I am questioning the rest of my children. I have been doing a lot of research and I know that it is hereditary. Has Anyone else ran into multiple children having the disease. What were the symptoms?? We all have had the blood test done and all were negative. My daughter who was also diagnosed was also negative.
My son has had a lot of behavioral problems with aggression and biting. He also has swollen hands sometimes and does not sleep well.
Just wondering about others stories if you are willing to share???
We have an appointment for my son this week to go see the same GI as my daughter. I guess for me to know for sure that he has the disease is reassuring because if I fully take him off gluten we will never know for sure. Even if it is not I will still be trying the diet.
We did have my daughter scoped and with the biopsy we found the villi damaged by the gluten. We needed the diagnoses for our own relief because of the negative result and for school and everyone to abide by gluten free and dairy free guidelines.!!!
I'm a bit confused.
How was your daughter diagnosed with Celiac disease if you all had a blood test and they all came back negative?
My niece has celiac, her two sisters/mom/dad do not. All tested negative, biopsy was needed for positive test for my niece. Her symptoms were almost entirely GI - nausea, vomiting, diarrhea, stomach pain.
How did your daughter get diagnosed? With a colon biopsy? I have a special needs child who does not have celiac disease but has an intolerance to gluten. We had her blood tested and she was negative as well, so we continued her diet as normal. After about a year, we finally decided to remove gluten and see how she reacted. OMG.... complete change!
When she was eating foods with gluten her anxiety became cumbersome, her aggression, her behaviors, she didn't sleep well either. She is non verbal so we finally figured out that she was having tummy issues when she would eat foods with gluten. I have heard that parts of your body can become swollen if you keep eating gluten and are allergic too it.
To get a true answer for celiac disease, you must have a biopsy of your colon tested. In our case, we didnt take it to that extreme because we could see an immediate change the first two weeks we removed gluten. Gluten intolerance is common for kids with her disability and autism. (which she has also) Good luck!
I don't have an answer to your questions about symptoms of celiac, sorry.
But I'm wondering, is there any downside to just trying a guten-free diet on your son? If it can't hurt, then why not?
