Duane's Syndrome Type I

Updated on June 02, 2008
N.J. asks from Longview, TX
6 answers

Hello everyone my name is N. and I am the single parent of a beautiful 17 month old healthy baby girl. When she was about 11 months old she was diagnosed with Duane's Syndrome Type I in her right eye ( in other words when she looks to the right her right eye will not turn to the right, which in turn makes her look cross-eyed in her left eye.) Is anyone living with this now or knows of someone with this syndrome, if so I would love to hear your experiences with it. What kind of limitations could she face? Her eye doctor told me he attended medical school with a young lady who dealt with the same issue.

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C.W.

answers from Austin on

N., I have heard of, read about and even witnessed a few patients with testimonials of improvement in craniofacial and visual disorder problems. It's awesome to see people's bodies heal and lives change from simple adjustments to bone structure. My husband is a chiropractor, if you would like more information, his name is Dr. Loverous Whittaker II and he has a mobile chiropractic practice her in Austin. His number is ###-###-####.

I hope this helps.

Articles on Chiropractic and the Improvement of visual disturbances http://www.chiro.org/research/ABSTRACTS/Blindness.shtml

http://www.intelihealth.com/IH/ihtIH/WSS/8513/34968/36802...
Look at the section under "Unproven Uses"

ABOUT NASAL CRANIAL RELEASE TECHNIQUE (NCRT) http://www.soto-usa.org/SOTLiterature/NCRT/AboutBACA.htm

Herbal Remedies for Eye Disorders
http://en.allexperts.com/q/Chiropractors-965/glucoma.htm

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J.T.

answers from Victoria on

If this is the same thing as a "lazy eye" there are exercises that help build up the muscles. Ask your doctor or look it up online. Best of luck to you and God bless.

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S.D.

answers from Houston on

Hello, Ive never met anyone else who had this, my son is 9 and was also born with Duayne's. He had surgery on his eye to make it not wander to the side. So he now can not look to one side without turning his head or the eyes cross. This has not limited him in anyway, form or fashion. He has 20/20 eye sight and his opthomologist says he will have no problems at all. The first 5 years we took him yearly to see an opthomologist with Texas Children's then it went to every other year and now he says that we dont need to go back unless he has trouble seeing distances (normal eye stuff) or until he is ready to start driving.

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N.S.

answers from San Antonio on

My oldest son, who is now 30 yrs old was diagnosed with Duane's. There was never anything he couldn't do because of this. He was a star soccer and fast-pitch baseball player. He is now in the Air Force serving his country without any problems from Duane's. There were no limitations for us from Duane's. Don't worry your daughter will be just fine.
Good luck with your daughter. Love her always, discipline with patience, teach her respect, and listen to her without interuption.
N. S.

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P.B.

answers from Houston on

Hi N., Have you heard of Visual Eye therapy? I am not sure if your daughter's eye problem would apply to this kind of therapy but it might be worth the try. My son suffered of eye tracking and after he was diagnosed he did the eye therapy and that was a blessing. His problem was very mild in compare to your daughter's but you might want to check it out with another optometrist. Anyway, Dr. Mofat in Sterling Ridge and Magnolia (1488) specializes on Visual Eye Therapy. Also, Dr. Voss in Houston.
Let me know if you would like more information on this.

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S.M.

answers from Austin on

Hi,
My name is S. and I have a 38 year old son who was born with Duane syndrome. He too looked a little cross-eyed, especially when he tried to look to the left. As I understand the syndrome, one of the 6 tissues in his eyes never developed into a muscle, so the tissue just remained a tissue and kept his left eye from turning to the left. It could go right, though. When he was 3, the doctor went ahead a operated to allow the tissue to loosen somewhat so that my son's eye was able to look a little straighter and be in a left position a little more, so he did not look quite so cross-eyed.

All my son ever wanted to do was to be a jet pilot. Needless to say, this syndrome elminates his periferal vision on the left...so he could not even enlist in the service, let alone get a license to fly.

The good news is that he has never even needed to wear glasses. He does have somewhat of a "lazy eye," which apparently is normal for this condition, but he drives and does NOT need to wear eye glasses as a condition of driving a car.

My concern as a mother was only that he could get hurt by playing a sport that would make him vulnerable because he had no peripheral vision on his left side. Other than that, I don't think Duane's Syndrome really limited him beyond keeping him from the career that was one that he had always wanted... and that was primarily because both of his grandfathers and 2 of his uncles were jet pilots. Even if that were the case, there are many wonderful career choices and opportunites in life that offer your child a great life, so I truly wouldn't worry. I would explore the operation, though, if you've not done so already. Good luck!
PS
I read a note below about eye therapy and what I'm thinking the person is advocating is exercise. As I'm sure your doctor already told you, the issue with Duane Syndrome is that the tissue never developed into muscle so there's nothing to exercise. You can only loosen the tissue, you can't turn it into a muscle.

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