Has Anyone Had a Child Undergo Surgery for Pectus Excavatum? How Bad Was It?

Updated on December 30, 2016
J.T. asks from Denton, TX
4 answers

This is becoming a possibility for my 14 year old son. Just curious to hear some real life experiences... Thanks!

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B.C.

answers from Norfolk on

You might get more feedback if you find support groups and talk with the people who are in them.

There's a Facebook page you can check out:
https://www.facebook.com/Pectus-Excavatum-152641274751328/

If you Google "pectus excavatum support groups", you'll get some other places to check out.

2 moms found this helpful

W.W.

answers from Washington DC on

No. I'm sorry. None of my children experienced this. I don't have any friends that have experienced this either.

There was a child at the day care I worked at years ago, but it was not bad, it was noticeable but not bad.

Seek second opinions. Make sure your son has been tested for other diseases and other congenital issues. Before surgery, makes sure the anesthesiologist and nurses know of his complete health history!

Good luck!

1 mom found this helpful
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M.G.

answers from Portland on

I am not sure my friend has the same thing exactly, but her chest was kind of caved in. She had plastic surgery and an implant made to fit. This was just a few years ago. In her case, it went well. Just the usual recovery time with plastic surgery.

1 mom found this helpful
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E.B.

answers from Honolulu on

I'm curious about whether your son has a connective tissue disease or Ehlers Danlos or Marfan syndrome. Pectus Excavatum often accompanies those. My daughter has Ehlers Danlos and Pectus Excavatum. If your son has the same, make sure your son's doctors are aware of it, as Ehlers Danlos can cause complications during surgery (excessive bleeding, for one). You don't need to share your son's medical condition with me, I am not trying to pry, just adding a word of caution. My daughter's Pectus interferes with EKG tests so they have to make adjustments, but they have decided not to operate. The Pectus isn't too severe in her case.

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