Oh I feel for you M.!!!
I've been there with my son. Not for prematurity, but different completely unexpected issue and also without a going home time line. It is so tough. He was there for 2 weeks.
Some things that were helped:
1. Friends, family, neighbors, people from your church will offer to help. TAKE THEM UP ON IT! As hard as it is to be on the receiving end, now is the time- you really do need it. When they ask what they can do give them specifics that you need, dinners brought in, grocery shopping done, someone to watch your little one, errands run, maybe company in the NICU, perhaps someone to take care of things for an hour or two so you can get a nap... People really want to help, and you do need it!
2. Get a good hospital grade pump.
3. Take an occasional break from the hospital. Go to lunch with your husband, or take your son to the park for an hour. It's so tough to leave, but you need some time with those you love.
4. Take a camera, notebook, a water bottle, and materials to read while you're in the hospital. You'll want the pictures later when you're away, the notebook is handy for jotting down notes when the doctors round, and it's nice to rock your baby and read.
5. Write about your experiences in a journal or family blog. It's a great way to express your feelings, and you will treasure what you've written later down the road.
6. Don't be afraid to ask questions. The NICU nurses and doctors are a special group of people and should be willing to answer your questions.
7. If you believe in prayers, pray, and ask others to pray for your family. I really think prayers can buoy you up when it gets difficult.
8. Don't forget to take care of yourself. You're still recovering from childbirth. Make sure you're getting nutritious meals, take soothing baths, and rest when you can.
It is a very tender time. I know. Soon you'll be rocking your little one at home. It will happen. You'll look back amazed at your strength during this difficult time, and you'll be so very grateful for your little miracle.
Bless you M. and good luck!