Hi L.,
I know what you are going through. It is heart braking to see your baby in pain. My daughter now 11, has been dealing with reflux since the day she was born. My daughter had other problems at the time too, she couldn’t digest proteins and had something called non-operative pyloric stegnoses (I am sure I spelled it wrong). When you put all these together she wasn’t just spitting up she would have projectile vomit, that would literally shoot across a room. Just before it would happen her little body sounded like a volcano was going to erupted. (well, I guess when I think about it ---- it was like a internal volcano and it did erupt.
I know how you feel about changing formulas - we did the same thing. Something tells me if you are trying to find a formula that works it maybe more than acid reflux. For my daughters problems with digesting proteins we did everything, formula to goats milk (yes, they even had me try goats milk, I had to add vitamins to it for her and other things too.) The formula that worked best for her digestion was, Nuetramagen (again, excuse the spelling). It was very expensive and she drank it until she was 18 months old. I was fortunate enough that when the doctor got samples of it, his nurse would call me and give me some to help out with the cost. Every child is different, you just have to be patient and embrace the trail and error phase, until you find what works best for your child.
As for the reflux part of her problem, we did a few things to help with it. We made sure she never slept in a flat position. When she was a newborn until a few months old, we placed her “nip-nap” ( I don’t know if they still call it that) in her crib and that’s how she slept. After that, until this very day her mattress is elevated by the head. We did this by putting a pillow wedge underneath her mattress to cause a slight elevation . The elevation is about 3 inches. This did a few things, One - it let gravity help with keeping the reflux down - two- she was aspirating fluid into her lungs from the reflux and it prevented that from happening. -
2nd - we place cereal in her bottle . (you have to make the nipple of the bottle bigger). I got flack from Know it all moms, that I put cereal at a young age in her bottle, it was to early for her digestive system. but her doctor recommended it and it was better than her having other problems due to severe reflux and having her choke in her sleep.
3rd- she was put on a prescribed medication. After she was on that med for about a 2 1/2 years, it was taken off the market because it was causing strokes in infants and the pharmaceutical company new about this and never listed it as a side affect - hence because of this stricter laws have been made and enforced - so trust you doctor if he prescribes one.
Your daughter may be like most babies and grow out of the reflux in time as her Body grows. Or she may be like mine and her reflux valve may just not work proper. Right now, my daughter knows, what to eat and not too - if she eats something that she shouldn’t she pays the price of real bad heart burn. She no longer is on prescribed medications. (her most recent was prevacid ) and uses over the counter meds to help with small episodes. She may need corrective surgery when she is older or she may not. Only time will tell.
What kept me focus, was . . . I just thought to myself, if this is the worse she has to deal with in her life, I was thankful. There are too many children out there very sick, with terminal illnesses. This was nothing, once I looked at the big picture.
My daughter is very active in sports, she plays ice hockey and soccer and is a straight “A” student. So you can see, this has not affected her life at all.
I Live in the Buffalo, NY area - and the doctors that really helped my daughter are from Amherst Pediatrics. If you live in the Buffalo, area - it couldn’t hurt for a second opinion. There phone number is - ###-###-#### - You would want to speak to New Born Nurse Karen - she is awesome!!! and the doctors there are awesome! :)
Good luck - Our family will keep you and your daughter in our prayers.