R.J.
Oh. My. Goodness.
Yeah. Steroids sooooooo often cause sleep problems. My 9yo has mystery respiratory problems (similar to asthma or CF but not asthma or CF). We started this steroid 2 months ago (3 month course at 6x the dose for a normal kid his size).
Guess when the EARLIEST he's gone to bed has been? 12am. But that has become freakishly early for him. When he's Usually getting to sleep these days is (wait for it) 5am or 6am.
Poor kid. He's absolutely exhausted. (I'm so happy right now I'm ADHD, since I can swing some insomnia and weird hours with the best of 'em, but after 2mo of this, I'm tired, too)
AND he's absolutley starving. All the time. We already eat every 3 hours. It's now every hour some days. For the first time in my life I'm actually having to monitor how much he's eating. Talk about the MUNCHIES.
Right now, I'm just rolling with it. This isn't bad habit, or something he's choosing... the starvin'o'the'hunger and no sleep is a reaction to the medication. It's only 3 months. IF we have to go longer, then we'll look at some serious restructuring.
HOWEVER... For him, the one big trick I've learned is to give him his steroids 30 minutes after benedryl and *literally* right before bed. (Since they can cause mouth ulcers he has to brush his teeth/tongue/cheeks/etc right after... so we puff in the bathroom, brush, and *immediately* go to bed).
The nights I get the timing down, he's usually asleep by 1am-2am. Trying to have it be earlier than midnight, though, and even if he can fall asleep he wakes up 6 times during the night.
I just keep reminding myself: It's the medication. It's the medication. It's the medication.