My 10 year old son just got diagnosed with partial epilepsy, he first had his seizure exactly 3 months ago had is second one now. This is for the mothers have children and mothers with knowledge with this condition any advice or things I need to be aware of. From a concern mom.
Maybe people here who can share personal experiences:
http://www.epilepsynw.org/programs/education-and-networki...
http://www.mededfund.org/NJgroups/ParentsSpecialNeeds.pdf
Best to your fella.
:)
My son has Rolandic epilepsy, he has had it since he was 8 years old, and is 11 now. He has the tonic clonic type seizure where his whole body jerks.
When he first had his seizures I was a walking wreck, I felt like our lives had come to an end and I wouldn't let him do ANYTHING! Poor thing. Whenever he would make a funny sound or jerk his body in a strange way as kids do I would shout "are you okay, are you having a seizure? It took me a couple of years to get used to the idea that it can happen any time, out of the blue, and I had to relax a bit. But it takes a while to get to that point.
We got a baby monitor with a camera, and we have that on in his room all of the time so we can see and hear him, but it's pretty unobtrusive, I would greatly recommend one of those for your peace of mind. My son has months between his seizures, but he is on medicine now which I think diminishes them slightly. Did they give you a diagnosis of epilepsy type?
I don't know if I can answer all your questions, but I do have a lot of knowledge on epilepsy as I have researched it a lot. You can pm me if you like
I don't have experience or knowledge with this condition but I want to send you (((hugs)))) and wish you the best as you move forward with this. I think it is great you are reaching out to other moms to get information, support, and encouragement.
Has he had an EEG to see what part of his brain is involved? What *type* of epilepsy? Have they started meds?
