#1- Get a team of doctors, not just one. You can discriminate. You can choose the doctors that fit you/her best. Don't stop until you find something/someone who helps. Get her allergy tested- both the traditional way and alternative ways. Start with scratch tests and bloodwork through a pediatric allergist (post on here to find a good one in your area) and get alternative testing like MSA testing (Homefirst pediatrics does it for $100 out of pocket and VERY worth it!!) and NRT/ART testing. Eliminate things that show up. See a naturopath. Demand bloodwork for PID/CVID (primary immune deficiency/common variable immune deficiency) and Mycoplasma (which causes a cough- commonly called "walking pneumonia," but there are various strains of this.)
#2- Allergy-proof your house. Do you have pets? Can you part with them or put them outdoors? At the very least, keep the OUT of her room.
Line her mattress and pillows with allergy covers (Target and Walmart even sell them) and remove the carpet from her room/the whole house if you can.
Invest in a GREAT vacuum and use it OFTEN. Rainbow is a great brand, but there are others with filters as well.
Put GREAT rugs by your doors and insist that everyone remove their shoes when entering the house.
Get air filters, or at least one for her room. Change your AC and heat filters OFTEN and get your duct work cleaned.
Check your house for mold. Clean up the bathroom (white vinegar works well) and make sure you're washing her bath towel, bath mats, and shower curtains often to remove the mold. You can get test kits at Home Depot to set out in rooms to test for mold in the air that will clue you in if you have an issue that needs cleaned up.
#3- Get her OFF the meds- the ingredients in them are likely making things worse. If they aren't helping, stop pushing them until you figure out what is going on. If she does need them, get them compounded at a compounding pharmacy- they can make them without gluten, corn, dye and all the other fillers/chemicals that make us sicker.
#4- Get the chemicals out of your home. If you have to paint, use No VOC paint, use white vinegar, hydrogen peroxide, lemon juice, or baking soda to clean. Toss EVERYTHING else- even the green cleaners. Change all your soaps to Dr. Bronner's. NEVER bring plastic grocery bags in the house- they off-gas more than anything. Rubbermaid type containers are HORRIBLE for off-gassing too, as is foam rubber. Anything made with MDF or PVC should go. Plastic toys should go (with exception for favorites.) Use reusable water bottles made of stainless steel or glass, not plastic disposables. Don't microwave in plastic at ALL- EVER. Use Ecover or another "green" dishwashing soap and then do an extra rinse every time.
#5- Bathe her before bed. Pollen and dust in your hair and on your skin can irritate you overnight. At the VERY least, wash her face nightly.
#6- Join groups online for parents whose children have similar issues so you can share ideas and have support.
Doing any or all of these might help AND might help you feel less helpless. Don't be afraid to try new things, and make sure you give things time to work- even if you eliminate things, it is going to take some time for her system to clear and the inflammation to decrease and get under control. I would be VERY wary, too, of steroids in ANY form. They can make immune issues worse over time, and cause plenty of other problems too.
Don't hesitate to contact me if she ends up with food allergies. My girls have allergies and I've gotten pretty good at figuring out menus and food substitutions and I'm happy to help all I can.
Hugs,
M.
www.chickiepea.wordpress.com (our food/health blog)