G.R.
Hi M. K - I feel for you. My youngest has processing issues as well as tremors in his hands. Have you had a chance to Google SID? You will find tons of stuff out there. According to your profile you live on the west side of Washington. You should be able to tap into many really good resources for your family as well as your daughter. Ask your dr or hospital or school if they knows of a local parent support group (for parents with kids with special needs/disabilities) in your area. You will benefit so much from this added connection plus they will be a wonderful resource for local services!
I do have a few questions: 1) how is her speech/language? Is it typical for her age or is she a little behind. If she is also ask for a referral to an SLP that specializes in kids. Many kids this age act out because they lack the speech/language skills to properly communicate. 2) do you have private insurance or is she on Medicaid? Depending on what you have can change the options you have.
3) have you asked your peditrician for a referral to an occupational therapist (OT) who KNOWS about sensory issues and make an appointment! The OT can even help with official evaluations too. 4) in the info from the dr did it include anything about IBI (goes by several different names depending on where you are)? This type of service/help works with the child & family to help with their behavior and teaches them how better to respond. Many of these trained staff will come to your home.
Some ideas: Keep a journal of her behavior (dates, time, what lead up to a problem/tantrum, etc). Also start to keep tract of what she is eating & drinking. You might even find a trigger with her diet that helps to push her into tantrum. Some kids also have underlying medical or allergy issues that a journal like this will help uncover. All of this will help you and help her doctors/specialists. Plus this journal will give you an outlet for your feelings/frustrations in a positive/productive way. Use a highlighter (different colors for different things) to do a quick check for important things for quick reference.
The BIGGEST piece of advice that I can give is take a BIG breath & realize that it is OK that your beloved child is not "typical/normal"! None of us are "normal" (:>). You will find out that your daughter just learns a little differently and that is OK. The wonderful thing with finding out how kids learn early will be an asset in the long run. Just remember one day at a time, you will make it!
A website that might help with ideas: (this is for Idaho but it might help) http://www.idahocdhd.org/dnn/idhelp/
as well as all the Google sites under SID
Take Care & you will make it!