Sensory Processing Disorder? - Schooleys Mountain,NJ

Updated on May 25, 2010
B.P. asks from Schooleys Mountain, NJ
4 answers

My son is 26 months old and has a speech delay. He gets speech therapy and developmental therapy for a total of 3 hours a week. The therapists have noticed that he might have a sensory issue. They reccomended an OT work with him. He is a pretty picky eater, sometimes runs in circles when bored (once or twice a day), and sometimes walks on tip toes (really only when barefoot). As a newborn he wanted to be held all the time or would only sleep in the carseat until he was about 3 months old. Most people would not think there was really anything wrong with him except that he doesn't make good eye contact with strangers. We are taking him to see a neurodevelopmental pediatrician in August and was wondering what your experiences where and how you knew that your child had an issue. Also, what were your outcomes and how are you children progressing?

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M.R.

answers from Columbus on

Yes, I recognize everything you mentioned. I am glad you are going to a Neurodevlopmental Pediatrician, and you are on the right track. You will know what you need to know and have a comprehensive plan to help him.

I have two kids who fit that description, and they are both doing pretty well. Get more therapy when ever possible, suppliment what he gets at school with private therapy, as much as you can afford, read everything you can about his diagnosis once you get it and do all the homework the therapists give you.

There may be rough spots, but it will all work out in the end, though you may know more about all this than you ever wanted to know! You are doing really great to be getting to this at age 26 mo! That is the biggest thing on his side. He should do quite well.

If the therapy he is getting is state provided, start him with private therapy too, and vice verca if your therapy is private. EI will cover him until age 3, but be right on the spot at your local school district for an evaluation when he turns 3. Use both and given a choice between more and less, take more.

When you start with the schools, start learning about advocacy, start at www.wrightslaw.com. He will need you to be his advocate.

I know how it is, you want to know right now. One thing I would suggest is that you read an article on the wrightslaw site called "Tests and measurments for parents and advocates" If you read it several times over the summer, you will be ready to understand the evaluation data that the DP will share with you, and it will make more sense. By then, it iwill be nearly time to have him evaluated by the public schools, and this understanding will be invaluable. It is something you can do while you wait that will help you in the very near future!

I hope his evaluation brings you the answers you need.

M.

1 mom found this helpful

C.P.

answers from Columbia on

Please research the following:

PDD-NOS

Asperger's Syndrome

High-Functioning Autism

The symptoms you describe are those of a child with high-functioning autism. Speech delay, sensory issues, pickiness, self stimulation or "stimming" (the running in circles), toe-walking.

Many children with AS like to be squeezed or held tightly for comfort, hence the carseat or need to be held. Your child may still find ways to get this stimuation by piling blankets and pillows on top of himself, wrapping up like a burrito in a blanket, or "smooshing" himself another way.

Not making eye contact is also a common symptom of AS. If forced to make eye contact they will become highly upset and uncomfortable, even covering their heads or eyes, or turning away physically.

I have experiences with Asperger's due to my middle child being diagnosed at age 8. I am also an "Aspie," but I did not know it until just this year. Once you learn how to cope with your child's differences, you'll find things much easier. Please consider reading "Look Me in the Eye" by John Elder Robison. He gives excellent insight on dealing with AS.

If you have further questions, please let me know!

C.

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C.D.

answers from Los Angeles on

My daughter has Asperger's as well. Each kid can present with many different symptoms. She doesn't present a lot with the ones you mentioned, but I've seen other kids who have.

In my daughter's case, she was diagnosed at 4 1/2. She began getting services at 5. Now she's 6 and has improved dramatically over the last year!

C.
www.littlebitquirky.blogspot.com
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M.H.

answers from Atlanta on

Hi Beata,

A lot of these type issues are exacerbated by synthetic chemicals. They contraindicate with each other and they wreak havoc on a neurological system. Detoxing may not be the absolute answer for you but it never hurts and it usually improves a situation. Besides my daughter having her ADHD diagnosis removed, I have a friend with an Autistic child with no symptoms, a friend with 3 asthma diagnosed children with no symptoms and a friend with MS with no symptoms. Detoxing the house and the body helps, always.

Your son may need further help but at least get him to a baseline so his diagnosis can be accurate. Most symptoms are medicated by MDs which is the introduction of more synthetic chemicals. If you can do without them and keep the body healthy, isn't it worth a try?

M.

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