Special Mamas of 'Challenged' Kiddos

Updated on February 14, 2012
C.W. asks from Union Hall, VA
10 answers

Hi all!

As some of you know, one of my daughters is 15...has had some 'profound' medical issues...and I remain so grateful and feel blessed that she is 'on the planet'...

My question/concern is that she is now in high school. A self contained special education classroom...with students from 14 to almost 21...with a VERY broad spectrum of challenges. All of her classmates are of 'typical' size. My daughter is not. She is both developmentally about 5 years old...and because of her complex medical history, she is the height of a typical 5 year old...and probably will remain so. I want her to have a 'go' with a regular Kindergarten class. The school system is not in favor...

I know my daughter (and all kiddos) are entitled to 'FAPE' (a Free and Appropriate Education). I am VERY familiar with IDEA (Individuals with Disabilities Education Act)...

I am in a new school system (moved here about 3 years ago)...She spent her early years (once out of hospital) trying to get appropriate services/settings. In fact, she attended 'regular' kindergarten...with her 'typical' peers at the age of 5...and again at 6....

ALL of the 'interventions'...and specialists in the world are NOT going to push/pull her beyond 'where' she is...and I am OK with that.

What I want...is for her to experience being in a setting where she can feel...and BE 'typical'.

The school system seems resistant to this.

I understand that they (the school system) do not want to open pandora's box with respect to students who are typical in development to a 5 year old...yet 'chronologically' 'typical'...

BUT...my kiddo is BOTH 'developmentally AND the size of a five year old.

I have already spoken to the 'y' in my area. They are receptive to my daughter 'doing' their summer program with their younger group...(K to second grade). I will get permission to video 'segments' from beginning to end of summer...hoping to document the progress and acceptance and understanding I am convinced will manifest...

What do you parents think of my pressing the school system...for next year...to place her in what 'I' perceive to be a more appropriate (less restrictive) environment???

Thoughts?

Comments??

Many thanks
michele/cat
_________________________________________________________________________________________________________

ETA

The school system here (a school system with ONLY one HS in the county) HAS an aid...WITH my daughter...predominately to 'protect' her...and keep HER out of 'harms way' with respect to other students.

The irony is, that in a K or first grade setting, she would need NO aid...she would be with a group of kiddos at her 'eye level'...she follows directions...she is kind...she would be 'center' of the 'mass' - and in some respects, a 'leader'.

She reminds me of THIS poem by robert fulghum:

"All I really need to know I learned in kindergarten.
ALL I REALLY NEED TO KNOW about how to live and what to do
and how to be I learned in kindergarten. Wisdom was not
at the top of the graduate-school mountain, but there in the
sandpile at Sunday School. These are the things I learned:

Share everything.

Play fair.

Don't hit people.

Put things back where you found them.

Clean up your own mess.

Don't take things that aren't yours.

Say you're sorry when you hurt somebody.

Wash your hands before you eat.

Flush.

Warm cookies and cold milk are good for you.

Live a balanced life - learn some and think some
and draw and paint and sing and dance and play
and work every day some.

Take a nap every afternoon.

When you go out into the world, watch out for traffic,
hold hands, and stick together.

Be aware of wonder.
Remember the little seed in the styrofoam cup:
The roots go down and the plant goes up and nobody
really knows how or why, but we are all like that.

Goldfish and hamsters and white mice and even
the little seed in the Styrofoam cup - they all die.
So do we.

And then remember the Dick-and-Jane books
and the first word you learned - the biggest
word of all - LOOK.

Everything you need to know is in there somewhere.
The Golden Rule and love and basic sanitation.
Ecology and politics and equality and sane living.

Take any of those items and extrapolate it into
sophisticated adult terms and apply it to your
family life or your work or your government or
your world and it holds true and clear and firm.
Think what a better world it would be if
all - the whole world - had cookies and milk about
three o'clock every afternoon and then lay down with
our blankies for a nap. Or if all governments
had a basic policy to always put thing back where
they found them and to clean up their own mess.

And it is still true, no matter how old you
are - when you go out into the world, it is best
to hold hands and stick together."

_________________________________________________________________________________________________________

THIS is 'who she is'

THIS is what she 'teaches' others...

a K enviromnent (with kiddos HER size) is where SHE could be a leader...

**sigh**

I know it is a crazy thought.

TY all for your responses.

I will save my SWH for a bit!!

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K.H.

answers from Minneapolis on

Have you considered a Montessori school? They have multi age classrooms and kids learn at their own pace. While she may never leave her level, she might feel comfortable there as long as she acts like a typical 5 or 6 year old. But know not all Montessori schools will be right since it is not a copywrited name and anyone can use it. Look for an AMI or AMS accredited school (I'm a parent, not an administrator). The you'll know it's the real thing.

FYI The Children's House (preschool) age range is usually 33 months - 6; Elementary is usually 1-3 grade, 4-6 grade though it depends on the school

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M.O.

answers from New York on

I really applaud your thinking creatively about this, and your love for your daughter shines through every word you write.

BUT, in real life, I think it's unlikely a public school system would agree. The schools just aren't set up to be that flexible. And if your daughter has a developmental age of 5 at the age of 15, she won't learn at the same rate as neurotypical 5 yr olds. if I were a principal, I'd be reluctant to stick her in a classroom where she'd get very little individualized attention and where the teacher had no special needs training.

More importantly, though, where do you see her life going when she ages out of the school system? Will she be in a group home, or adult day care? I ask b/c she'll probably eventually be with peers who are physically larger. Do you really want to teach her that the only acceptable friends are people of the same height?

My recommendation would be to focus on the lesson "friends can be short and tall" - a very kinder-friendly lesson in respecting diversity. Finally, "everything I needed to know..." is beautiful and sweet, but i'd caution against over-romanticizing kindergarten. Yes, the kids are cute, but there's plenty of teasing and proto-bullying in that age group. I'd venture that in any school building, the kindest, most respectful space is the special ed classroom.

Best wishes,

Mira

6 moms found this helpful
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L.M.

answers from Norfolk on

I believe you have a valid issue to not want your daughter with other disabled children more than twice her size. I do, however, agree that a "typical class" may not be the right match for her either. Mostly because regular classroom teachers just aren't qualified to deal with the specific physical and educational demands of children disabilities. In the absence of an aid (shadow) being assigned to your daughter, it is likely that mainstreaming is not feasible. t can't speak to the specifics of your school district, but where my son goes to special Pre-K, they have classes somewhat organized on the basis of functional abilities of the students. Perhaps finding a class where the children are closer to your daughter's physical size, but where she could still have the possibility to be educationally challenged is a better compromise. Somewhere in the elementary school level of special needs, perhaps?

Of course without knowing all the specifics of your daughter's abilities and needs, this is all just supposition. Mostly, I am in favor of the Mom Instinct. If your gut is saying it is a bad idea to put her in a class with kids ages 15 to 21, don't do it. Ask the school administration what their next offer is and keep pushing until you find something you can work with. We're not given these children to be popular. They come to us because we are warriors. :-)

4 moms found this helpful
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I.G.

answers from Seattle on

Frankly, the problem is that you are asking for special accommodation for your child and such "exceptions" cost money. I assume that your child needs additional assistance in school? Your school district had decided for a setting that groups "special needs" kids, therefore probably pooling resources and saving money. In a system that does not generally places special needs kids in their general population classrooms it requires administrative resources to do this for a single child (even if this is the perfect setting for your child) and this equals work and money.
I am not sure about your state but in ours schools are cash strapped to the breaking point and they simply will not and probably can not provide anything that goes beyond the bare requirements. Your district does provide basic education for your child, and while she surely would be deserving of the experience, I don't think it's something you can expect from a public school.
Please understand that I am not saying that their approach is right, or fair or even ok, but with the state of public education funding being what it is, well it is what it is, and that means sometimes it is not ideal.
Now that said, there are many private school that take pride in providing an integrating approach that support classroom with students of all abilities and often different ages. If this is something that is important for you maybe consider contacting a few Montessori, waldorf, or other alternative private schools and find someone willing to work with you.

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S.H.

answers from St. Louis on

I keep going back to the same thought: why is the school district against this? Are they incapable of providing appropriate care for your daughter? From a health standpoint, do they believe she is at risk within a standard KG classroom?

& more one thought: other than this is what you want for your child, what do you hope to achieve thru this year of KG for your daughter? Since she's already been thru two years of standardized KG, what do you want for her? Is it your desire to keep repeating KG? Doesn't the district have a similar class available with younger children? Would this be a better option? :)

which brings me to: how do you believe the proposed class would not benefit your child? Is it her size alone that makes you question this placement? Wouldn't her educational experience be specifically geared toward her specific needs?

Help! I don't know enough to be much help for you. I responded with these thoughts simply because they really jumped out at me. Please don't see offense in any of my words! I truly wish you Peace. :)

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S.T.

answers from Washington DC on

she sounds like a sweetheart.
so do you.
and yes, your daughter is darn sure tootin' entitled to a FAPE.
but public schools are by their nature limited in what they offer. they cannot possibly be all things to all kids under all circumstances. and they ARE trying, and it sounds like they're actually doing a pretty good job, of providing your daughter with a safe situation that does indeed address her special needs, even if you're not seeing eye-to-eye on the best way for your particular daughter to be handled.
and that's really why there are other educational opportunities available. rather than battling a beleaguered and cash-strapped school to do more, i'd look at other venues.
kids without special needs also have to lump it in public schools, in classes and settings that don't really suit them or let them develop to their fullest potential. in your situation i'd find a homeschool community that is open to special needs 'children' (and most groups are) and start developing your own kindergarten setting where your daughter CAN be the leader you see in her and have the opportunity to play with *other* 5 year olds. and the parents of most homeschooled kids would welcome the opportunity to have their kids be friends with someone like your daughter. a wide-ranging group of friends in both interests and ages is one of the things most of us groove on.
good luck!
khairete
S.

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K.M.

answers from Chicago on

I would try a preschool or other setting that you would pay for as an experimental trial to see what happens before "fighting" the schoolboard on this. I understand what you are looking for I get your plea and as a parent I would not have an issue with it if you daughter were in my son's class (my son is a year behind mentally and a few years ahead physically) except if she is physically weakend the kids may play too roughly with her. Have you gotten in writing WHY the school is opposed to the idea? Have you spoken with said school's teachers to see their take on the situation? I would get as many perspectives on this as possible if you choose to fight this and get your daughter said placement.

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N.B.

answers from Washington DC on

From what you are telling us, I'm behind you 100%. It seems insane that the school system wants your precious, tiny, special daughter in with large HS students!!!

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Y.C.

answers from Orlando on

How can anybody know if it is a "good" or "bad" idea if nobody has try it before?
Any change for good change has always stared some place, and probably at the begging many would think it was not possible.
I can wait to see what happen at the Y, and I would go from there.
No matter what happen from here Cat, I guaranty you, that you have put a thought in more then one person today, and just that is a amazing begging!
=*)

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V.V.

answers from Louisville on

I think the problem with this will ultimately be that soon every parent of a handicapped or disabled child will soon want to do something similar for their child - to have their child in a less restrictive environment, even if it's not quite appropriate. And having said yes to one parent, the school district is in effect making policy, and will be forced to say yes to other parents as well, and the end result will be that disabled children will be in inappropriate environments, where they will not only be unsafe & get nothing out of the experience, but they will be a distraction to the rest of the student body as well.

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