Trying to Conceive Diagnosed with PCOS Today:(

Updated on October 09, 2013
L.R. asks from Livingston, NJ
9 answers

As you are aware from other post I have been trying to conceive my second child since around July. I never get a period unless brought on by provera. I had a ultrasound today and was told I have polycystic ovarian syndrome which is why I don't get my period and I am having a hard time conceiving or ovulating. I am 29 yrs old and only 112 lbs. my blood work was normal. so I have no idea how I have PCOS. but I do. so starting 102413 I am going to take provera again and this time CHLOMID and fertility drug to make me ovulate and produce eggs. I am very worried about this. does anyone have any success stories of taking this? I don't understand also how I got pregnant 4 yrs ago and now nothing!!! im sure I had PCOS 4yrs ago wouldn't you think?
im also worried about now having twins. which if it happens it happens. lol DR said I would have 8%chance.
I cant believe I have to take fertility drugs. is it also just possible I haven't uvluated yet this month? I am right now on day 14 past my period.
thanks ladies any support is appreciated.

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W..

answers from Chicago on

My sister has PCOS and was told by leading fertility experts at Mayo that she had less than a 0.05% chance.... As close to zero as you can get.

My niece will tell you 0.05% is still not "impossible" ;-)

5 moms found this helpful

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C.O.

answers from Washington DC on

L.:

PCOS is very common. I was diagnosed with it. The funny thing? When I had my hysterectomy in 2011? NOT ONE cyst was found on my ovaries....and that was with the same doctor who diagnosed me. They kinda slap it on as a label when they really don't have an answer as to WHY your body is not working the way it should. Did your OB do an ultra sound of your ovaries? or did they just go off a blood test? If off the blood test and the blood work was normal? PLEASE!! PLEASE! PLEASE! see an endocrinologist!!!

You need to go to an endocrinologist...they will test you for more things than just hormones.

During this time? I would NOT try and get pregnant.

I took chlomid - never got pregnant on it - however - my body was working like clockwork when I was on it - I lost weight, just like I did when I was on the pill (opposite of most women), felt GREAT and my mood swings went down to almost non-existent.

My girlfriend got pregnant with quads on Chlomid. It was hard...as her body couldn't handle the stress and she lost all of them. She got pregnant again on Chlomid and had to make the decision to take 2 of the 4 away since they already knew if she went much past 20 weeks - she'd lose them too. it was the hardest decision they had to make. One that she still grieves over.

Is your fiance on board with this? Do you have a wedding date set? If not - I strongly urge you NOT to put too much on your plate. Get married first. Go to an endocrinologist and get to the root of the problem - not just PCOS - but see if they can find out what is going on with your body.

I KNOW how important this is to you. I've been there. Like I have told you in previous posts - it took us 3.5 years to get pregnant.

You are sooo focused on getting pregnant you body is in flight or fight mode. It's fighting you. It KNOWS you are NOT ready to conceive. Sorry. As hard as that is to hear, you need to hear it.

Don't rush into chlomid until you have researched it.
Talk to your pharmacist about it. It's their job.
Being diagnosed with PCOS - many OB's want to prescribe Metformin (a diabetic drug) and it messes with your pancreas. yes, women will tell you they got on it and went off "with no problem at all" - the problem is? They haven't gone in for a serious exam where they do an MRI of your pancreas...once you give a normal working pancreas extra insulin - it messes with it. ASK THE PHARMACIST...it's their JOB to know what's in the pills and how they work....they will know better than you OB/GYN.

I'll state again - please - DO NOT TRY to get pregnant until you have talked and been examined by endocrinologist and talked seriously to a pharmacist about the drugs they want to give you. I say this with experience and out of care for you.

good luck!

2 moms found this helpful
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C.H.

answers from New York on

I have pcos, it's something we are born with and sadly there is no cure. I too am only about 120 pounds, not the usual weight associated with pcos.
The best advice I was ever given was to do your research on pcos. You will be surprised just how many doctors don't have a clue what it's all about and how it can affect your life. And knowledge is power after all!

I tried chlomid, metformin and eventually IUI to conceive my TWIN daughters lol. Believe me, if you have twins, it can only be a blessing. This is something I try to remind myself on a regular basis :-)

The very best of luck on your fertility journey xxx

2 moms found this helpful

S.J.

answers from St. Louis on

I have PCOS. I am 5'7" and 125 pounds, not your typical patient either. ;)

I got pregnant three times, all in the first month, while on metformin (glucophage). I would highly recommend you seek out multiple opinions before resorting to chlomid. I had zero side effects with metformin.

2 moms found this helpful
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D.P.

answers from Minneapolis on

I am PCOS and have 2 beautiful boys today! I had 2 early miscarriages right off the bat and finally got pregnant after that. 3 years later had no problems. I believe it can be hereditary. My grandmother was not officially diagnosed since I don't think they knew what it was back then but she was told she may not be able to have kids and she too had 2 boys! I ended up using progesterone to thicken the lining of my uterus so the egg would stick. Not sure if that's what did it but it's worth a shot! What I can say is don't get worked up over it as that will not help. The less I "tried" is when I got pregnant! Good luck! I always say I am very blessed to have my boys knowing this!

1 mom found this helpful
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P.K.

answers from New York on

You have only been trying since July. Be patient. May want to see an endocrinologist before you start clomid.

1 mom found this helpful
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H.W.

answers from Portland on

I was diagnosed with PCOS back around '05 or so and have had some pretty tough history with cysts. In spring '06 I became pregnant and began working with a naturopathic midwifery team. Although I lost that pregnancy, they were able to help me with herbs to take so that I could get pregnant, and I did.... just five weeks after the loss. That pregnancy went to term (my first; had three previous miscarriages) and we have our sweet son.

All that said, I was really lucky. Were I in your position, I'd try to get as much information going forward and maybe take a break on the babymaking for now if it's feeling stressful. It's okay to say "I need a little time to wrap my head around this" and decide if this is something you are wanting to do. Maybe talking to a fertility counselor would be helpful, esp. if you only just got all this information. It's a LOT to digest. I'm not saying 'don't go for it', but maybe to really look into what 'going for it' is going to entail. It's a hard process for some women, so be sure you give yourselves some time and make sure you have lots of good support. The suggestion to speak with an endocrinologist is also a really good idea. The more of a picture you have of what's going on with your body, the better you will understand your options.

1 mom found this helpful
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K.O.

answers from New York on

I was diagnosed with PCOS when I was a teenager - over 20 years ago. I was told infertility was a possibility. I took provera for about a year, but then stopped, and just let my body do its thing - I would skip months, and in my early 20's skipped a whole year, some of that while studying abroad. I was always very active in sports in high school and into jogging regularly and working out with weights throughout my 20's. I did not take birth control and used condoms. Husband and I stopped using condoms when I turned 30, and we got pregnant immediately. I didn't even know I was pregnant until I was almost 5 months along - skipping months was my norm. The second time around, I was past 35 and wanted to have my second child. I was in a hurry. It was the first time I guess I was trying to conceive, since our first success was not something we were really in a hurry for, and rather just had fun with it (which is definitely the best thing to do). After about 7 months of trying, I spoke to my gyn/ob. She gave me advice that worked like a charm. First she told me to stop exercising and eat more. Second she told me to get an ovulation kit. The kit took the timing pressure off, so we were both more relaxed. Eating more I put on a pinch of weight. I was pregnant in two months.

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A.P.

answers from New York on

I have PCOS. It's a tricky thing--when I was first diagnosed, I wasn't ovulating regularly--in fact, probably just a few times a year. Then I was diagnosed and treated, and went on to have three kids. I STILL have PCOS, even though I get my periods like clockwork now. I didn't use fertility drugs. My repro endo put me on metformin, because I have the insulin resistant form of PCOS. Sounds like, since you are thin, you may not have insulin resistance. Metformin did the trick for me, so I didn't need further interventions. Do you like your doctor? Trust him/her? My doc is a PCOS specialist, leader in the field. He used to practice in Philly, but is now in West Reading, PA. He really knows his stuff, and his "specialty" is helping women with PCOS get pregnant. Look him up if you're interested: Shahab Minassian. Good luck to you.

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