Hi A.!
My daughter is 18 months old and was diagnosed with this when she was 3-4 weeks old. The only reason it was diagnosed so early is because she was becoming septic (infection in blood) from her not being able to have all her urine come out. She has been seeing a pediatric urologist at Children's Hospital in Birmingham, AL. She has to have a renal ultrasound every 6 months and once a year have the ct scan (it's called a voiding cystogram. They haven't put my daughter to sleep with it, but have given her medicine to relax, which really doesn't work. with the ct scan, they have to put a catheter in her bladder, fill her bladder with dye, then take it out and wait for her to pee it all out to see how bad the reflux is. My daughter's is grade 4-5. It only goes to five. She has been on antibiotics since she was a month old every night to prevent a urinary tract infection. Her doctor says that she may be on the antibiotics until she is six and she may grow out of it, but that if she has a urinary tract infection or a kidney infection, she may have to have surgery. This is because her kidneys, especially her right one, hasn't fully formed. If you have any more questions or just want to talk, email me at ____@____.com.
I know it is scary to learn all of this, but you have people to talk too!!