So here's the long story. My baby is a stong healthy 7 months old, I work 60+ hours a week and was recently diagnosed with an over active thyroid and with narcolepsy (a sleep disorder). I also was diagnosed with sleep apnea in 2009. I am having a hard time really accepting the new "ME", I don't want to have to take pills for the rest of my life. I knew this day was coming as everyone else in my family has thyroid problems and one aunt has the narcolepsy (didn't think I would get this one though). My pills just for the narcolepsy are $300 a month and my wonderful insurance pays $10 of that. WTH???? Right. It was even aruged that I must have this drug to function as a normal person every day, but they didn't seem to care. I am now switching med's to a cheaper one, but have no idea if it will work or not. I haven't seen the specialist for my thyroid yet, but that apt is only a few weeks away now.
I have a wonderful loving husband who does anything and everything for me, but he just doesn't understand my feelings right now. It makes me cry every time I talk about it which doesn't help matters. I may even lose my license due to the narcolepsy. :( When my little guy was 6 weeks old I fell asleep while driving home and wrecked our car, but thankfully no one was hurt. This incident is why I felt I needed to go see a doctor about my problem is I don't want to hurt anyone else or myself because I can't stay awake during the day.
How do I help my hubby understand?
P.S. I have put in for a different job that is only 1/2 mile from my house instead of driving the 40 min every day like I do now. I am just waiting to hear back. If not I may have to start carpooling with the guy I work with since driving is becoming so dificult for me, but I really hate relying on someone else to get me to work.
Any advice that you can give I would appreciate it as I need to hear something.
Thanks
Thank you for the kind words. Right now it means a whole lot to me! I just don't understand why I just can't accept this change?
Give yourself some time to grieve. Do NOT drive till you have substantial experience with the new medicine. Then, keep brainstorming different ways to be happy/creative about the changes you can make in light of your new awareness of your health. It's always something, you know? State of mind matters a lot.
Hi T., I have been reading your posts and responses for quite sometime now. It's clear your are a woman of substance and strength, as you are frequently giving these things to us regularly.
I'm sorry you are going through such difficult times. But from what I know about you, I think you WILL work through it, there ARE brighter days ahead, you will summon the courage to get through this day and more days coming like it.
I hope you'll keep asking the rest of us to boost you up, the way you boost US up all the time!!
Sending strong Happy Positive Determined Vibes!
:)
I have similar issues...See your specialist and I would seek our a nutritionist who focuses on more homeopathic type approaches. I intend to do that in my area and know one..because like you I don't want to be on meds the rest of my life either.
You poor thing! These diagnoses suck! Pardon my language.
Listen, there are people all around you with challenges. Everyone handles theirs differently, but most everyone goes through an adjustment period. I think that is where you are. I do believe you will figure this out. Backing off from driving sounds like a good idea until you are stabilized. Things may improve, but over time you will figure out ways to make things easier. My grandmother used to say, "You get used to anything," and I think that is true most of the time.
You are young and medicine gets more advanced every year.
Have you tried acupuncture? I have heard sometimes that helps with narcolepsy. My business involves nutrition and supplementation. I believe many of our "ailments" are directly related to nutritional needs. I would strongly consider a full nutritional evaluation if I were you. Try to find a doctor that believes in "natural" remedies. I'd be happy to recommend a couple of supplements if you would like. There are lots of things you could try.
Coming from a very similar experience, if your insurance covers it and you can afford it, deffinitely go to a good reputable Couple's therapist, otherwise this can/will affect your marriage. Right, just another thing you didn't want to hear but I'd rather you hear it now before it's too late!
On another note, make sure to conduct as much of a healthy lifestyle as possible. I know it's hard being as busy as you are but you should never be too busy for your own life and for your children! Switch to all organics and wholesome foods (that you find on earth!). Nothing processed!
I read "The Cure: heal your body save your life" and it was very helpful.
While I'm not telling to stop your medication, and you shouldn't, try to do as much healthy things for yourself as possible, lower the intake of refined sugards and carbohidrates and processed meats, lots of excercise and outdoor activities, and maybe, just maybe, with your doctor's OK you might be able to get off some meds in the future!
Good luck with everything and think of your kids who need you!
Sorry to hear of the changes you are going through. It sounds like you are sensitive right now and unfortunately, husbands don't always have the
sensi-button to understand.
Take a look at iodine in your diet. I was trying to get away from high sodium salts in my diet, as I really don't care for salt too much. I switch to a course rock salt to lower the sodium. As I put the box away, I noticed the box said, "Not a source of Iodine". It got me wondering what the purpose of iodine in our diet was. In looking it up, when we are low on iodine, it can cause a thyroid problem, as well as mental retardation to the fetus of pregnant woman. I was shocked! About 2 - 3 times a week, I now sprinkle iodized salt in our dinner.
Don't have advice per say just understand you are not alone. My husband has had alot of health issues pop up in the past 3 years from his back to his jaw to his digestive system. He feels at the mercy of his own body and is afraid to enjoy life for fear of hurting himself (exercising the wrong way and throwing out his back, eating the wrong thing at the wrong time and feeling nauseous for days) A counselor may help you put things in perspective. My husband is trying that right now. I guess we figured he does have to mourn the loss of who he was before and find ways to get back to normal as much as possible.
