Hello mama's. any tips on building awareness for a certain cause. It's something that's very dear to my heart, and there isn't an awareness for it. So I would have to start from scratch on it. Any ideas would be appreciated. thanks.
Hi Cheryl, yes it is for her lung malformation. After some testing it is Congenital Lobar Emphysema. Which is somewhat similar to Congenital Cystic Adenamatoid Malformation, and Bronchial Pulmonary Sequestration.
E.:
Are you talking about the Congenital Lung Disease your child has?
i would start a facebook account for the Awareness...like a mom did for Wilson's Awareness. https://www.facebook.com/groups/110527915647216/
then go to your hospital and talk with them about what you want to do. Then talk to other HUGE organizations - like the American Lung Association and see if they can help you out.
It would help if we actually knew what the cause was. After all different things require different resources.
If its medical cause look on http://www.mdjunction.com/ and you might find a group.
Start with your local newspaper. See if they'll do a story about it.
Create a facebook page.
