I Going Crazy! Being Called Almost Every Week....

Updated on March 08, 2007
D.M. asks from Sarasota, FL
27 answers

I have a 19 month old who was born only weighing 2pds. So she has had her share of health problems and they are getting worse. This poor child stays sick b/c we have to put her in a daycare so we can work. She has a vommitting problem on top of Asthma, Reflux, Heart Murmer and Blounts Disease. I have to keep taking her for doctor visits all of the time and getting called to come pick her up from daycare all the time. We can't get insurance for her that we can afford. Social Security has turned her down. So everything is out of pocket. I am ready to break down b/c it seems my poor child can't get the help she needs b/c no where will take her or is way too much money. My problem is I have to leave work for her so many times I am really wondering how I still have a job. Is there something I can do or an agency that could help us. Before we lose everything b/c of not making the money we need to live.

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M.H.

answers from Sarasota on

As far as when she is sick, Sarasota Memorial Hospital runs a "sick child" daycare and I have heard that it is great. I know that it would be another additional cost, but it would be worth looking into because I don't think it is a lot of money.

1 mom found this helpful
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A.F.

answers from Tampa on

get in touch with Agency for Persons with Disabilities. They can help - they will put you on a Med Waiver waiting list (my son is on it). In the mean time, see what Easter Seals may be able to offer.

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A.M.

answers from Tampa on

Perhaps SOLVE of west pasco county can help you. 6102 Indiana Ave. New Port Richey, FL 34653
###-###-####

They serve mothers and families in need.

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D.

answers from Tampa on

Dear D.,

My daughter was born 3 pounds and had many problems. The doctors had no answer. What I am going to tell you is not easy but it will make your child better. I am NOT a doctor but these are the things that helped mine and they really helped.

1. Take her off all milk. Milk is not good for asthma. Or at least when she is sick give her nothing with milk in it until she is better. But she could be allergic to milk which in turn builds up the mucous in her body.
2. Get yourself some Nutritional Yeast flakes made by a company called KAL. Costs 10.00 for a good size tin.
3. Get cod liver oil. Can be flavored like cherry or something. It tastes terrible.
4. Make her a protein shake with brewers yeast, 1/2 teaspoon of cod liver oil, and a tiny amount of vitamin C powder. All of these things are totally natural, not too expensive, and will build her immune system.
5. There are also liquid vitamins for young children at the health food store that taste great. Natures plus is a manufacturer who's products taste good. This might sound like a lot but when you add it all up it will be far cheaper than all of the out of pocket that you are spending right now.

You are in for the long haul with your daughter. No juices - they are too sweet, rot the teeth and are acidic from sitting on the shelf. Fresh squeezed oranged juice is fine.

Feel her a very good diet of veggies and quality meats.

New stuff will come up with her, but if you work at it and are consistent for years, she will get strong!

Mine had allergies, digestive problems, and asthma. Now she is a very healthy 6 year old that is above average height and very strong. You cannot tell she was a preemie.

Read nutritional books or do research into alternatives for your baby. You are learning that doctors are experts at quite a few things but they do NOT know everything.

The things that I recommended are very, very safe. If you are unsure, then do very small dosages to try it out. But, this does take work and time.

I hope this helps you.

D.

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J.P.

answers from Jacksonville on

well im new to the are too, so i dont know about any agencies, but im single mom too, with 2 special needs kids. Ive found the greates daycare center for my 2 y/o. Maybe u need a place that specializes in special needs children and where they woint call u all the time, Its called DLC learning center on 4101 college street. they are not expensive thay have after school but sometimes u have to wait to get in. and they also offer scholarhips.

1 mom found this helpful
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K.P.

answers from Tallahassee on

Hi D.:

Have you tried the Kidcare Program for health insurance. Also based on what relatives have said in my family social security always turn you down the first time, try reapplying to see if they will approve you the second time around. Good luck & I will keep you & your family in my prayers.

Trina

1 mom found this helpful
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K.T.

answers from Tampa on

Have you checked into KidCare? If you don't qualify for medicare for the baby Kid Care is a Florida state program that offers insurance based on your income. The state has to have so many persons in the program or it will lose its funding. Good Luck.

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C.

answers from Tampa on

Hi D.,

I am sorry to hear you have been having a difficult time. I can understand your frustration. I have a child with cerebral palsy and miss a lot of work, too. I am very blessed to have an employer who understands my situation. Keep in mind that an employer will work with their employee's as long as they feel the job is getting done. I get to feeling guilty for missing work, but know that when I get back in I need to get done what is expected of me. They seem to be more apted to work with me when they have nothing to worry about.

As far as the bill collector thing, if it is for medical bills, by law they are not allowed to harass you about the outstanding bills. You can agree to $2.00 a month if that is all you can afford. Don't let them intimate you. They will try. If it is a creditor calling about a credit card, you can try to explain the situation to them. Most of the time, they do not care. They are only looking for the money. Keep in mind that this is a hardship. The worse thing they can do is to call you. They can not take your home, car or anything else. Their only defense is to call. Next time they call explain the situation and tell them not to call you again. This has worked for me. I pay them what I can when I can. Make sure to take care of yourself and your babies before you worry about any creditor trying to harass you. Believe me I learned this one the hard way.

As far as agencies, you can check with Heathly Kids. I understand the program may be available to children (not sure if they have to be school aged). You will still pay a co-pay and a premium, but it will be insurance coverage at a discounted price. If that doesn't work check with CMS (Children's Medical Services). It sounds like your child would be able to quailfy. I believe it may be income based which I find to be completely absurd being our children need services. If all else fails, check with Medicaid. If SSI turned you down, then Medicaid may still take your child. I do know that this is income based. I believe you have to make 3000.00 or less a month to qualify, but this figure is adjusted with the number of dependents you may have. I also just thought of the Shriner's in Tampa. They offer services to any child with problems. Look them up as well. I know they do a lot with orthopedic stuff but I am sure they may do more or at least offer you a suggestion as to where to go.

I hope my information has helped you out. Stay strong and know that it does get better in time. Try not to worry too much. Good Luck!

Take care,

C. J.

1 mom found this helpful
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N.T.

answers from Tampa on

Hi D. M,

You sound like a very strong woman. You also sound very blessed. God does not give you more than you can handle. I will be praying for God to continue to give you strength and good health to your children. Just remember that there is always a rainbow after the storms.
Please take care!

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L.B.

answers from Tampa on

hi there i am soo sorry to hear about your baby being sick and i know what a pain daycare is!! i also am a single mom struggling to get by. i have a website for you it is for "Florida Kid Care" wich is insurance provided through the state by medicade? but it cost ALOT LESS then private insurance. also u can take your child to health clinics that are ran through the county and it is based on your income. we live in south tampa and go to the floyd kelten health center. the doctors there are fantastic.
anyways let me know how things turn out.
www.healthykids.org

best wishes
~L.~

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A.S.

answers from Jacksonville on

http://www.floridakidcare.org/

Try the Flirda Kid Care for affordable insurance. They base it what you get paid and for the most part doctor's accept it.

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C.W.

answers from Tampa on

Hi, D.,

I have a couple of phone numbers for you. I don't know if you've tried them already, but here goes.

Children's Medical Services -- ###-###-####
- They provide health care for children with severe health issues.

Florida KidCare -- ###-###-####
- They provde insurance coverage for children whose families cannot afford insurance.

As for the the Social Security application, appeal NOW! Don't wait. Get a lawyer to do it for you. Because your daughter has several health issues, Social Security turned you down. If she had had one problem that made her disabled, they probably would have been able to make a determination in your favor. But because of the way the law is written, a determination must be made; so, you have to file an appeal. And, there is a time limit; so get a lawyer TODAY!

Also, get in touch with McDonald's Training Center, they may know of a day care that can handle your daughter's health issues so that you can work. The cost probably be picked up by Title XX; McDonald's would be able to tell you. Here's their number: ###-###-####.

I hope this helps you. Let me know.

Blessings,

Cynthia E. Welch
L. B. I.

1 mom found this helpful
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N.F.

answers from Jacksonville on

Hi D.,
You certainly have a lot on your plate. I am a little confused though. In your message you said "we have to put her in daycare", but in your "a little about me" you said you are a single Mom. I was just thinking that if you are in a position to (i.e., you have another adult in the household working), maybe you might look into comparing the cost of working against staying home with your children. In some (not all) cases, it really can work out to be cheaper than working. I do not know all of the details of your situation so I can't make that call for you, only you can do that.
In terms of medical care for your baby. Maybe you could contact the state. Some states have programs that not too many people know about. I am sure you have probably already looked into that type of thing, but it certainly can't hurt to be persistent.
I wish you and your family all the best.
N.

1 mom found this helpful
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J.D.

answers from Biloxi on

Have you tried Florida's WIC program (Women, Infant & Children)? They offer things like milk, egg, cheese and juice for older children up to the age of 5 and formula to infants, and if you are breastfeeding, they offer things for mom too. They also have a Healthy Kids program. Also have you tried to get Medicaid???
Here are the links for both WIC and Medicaid if you haven't found them:

http://www.doh.state.fl.us/family/wic/

http://www.dcf.state.fl.us/ess/

Hope that helps.

Take care,
God Bless,
J. D

Mom to Ashleigh & Austin ~ almost 3

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E.T.

answers from Jacksonville on

Have you tried Florida Kid Care insurence. I do not know much about the insurence, but I work with kids and have seen the fliers.

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S.H.

answers from Tampa on

Have you gone to the state for public assistance? If you got your child onto Medicaid I am sure they would cover the doctor visits, etc. and could possibly point you towards a caregiver that is qualified to care for your child instead of a regular daycare.

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E.W.

answers from Jacksonville on

D. M ,
For starts everything you have stated shows your children should be qualified for State Health Coverage. http://www.floridakidcare.org/
>Eligibility & Cost: http://www.floridakidcare.org/eligibility.html
>Partners Agencies:
http://www.floridakidcare.org/partners.html
>Children's Medical Services (CMS) program:
http://www.cms-kids.com/
>Florida Program & Resource:
http://www.floridakidcare.org/resources.html

The nice thing is if you choose not to go through DEFCS(Medicade offices)for the free health coverage you can rgister online at the site above. I would go Medicade first, If they turn you down appeal. No if you did know that is not too untypical of SS, reapply / reappeal your SS case. CALL CMS and see if they can help direct you. IF all else go to your Local or even State officals complain & t ell them of the situation. Call management in Tall.Fl demain to speak to head cordinator or manager. But to this you will have to at least attempt to go through the Medicade/Food Stamp department & been turned down.
http://www.healthinsuranceinfo.net/fl.pdf
I hope this helps
E. W.

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J.W.

answers from Tallahassee on

D.
My name is J. and I can somewhat sympathize with your problem
I have a 18 month old son and i have just put him in daycare about 5 months ago and he stayed sick all the time, i knew that i had to do something different. So i searched everywhere for something i could do from home and after months i finally found this wonderful team called Stayin Home and Lovin It
I admit I was sceptical at first but i jump in with both feet and it is the best thing i have ever done for me and my family.
I have since quit my job and took my son out of daycare. If would love to share all the info about this company with and maybe you can do the same as i did and be able tho stay at home with your babies. Please give me a call ###-###-#### or send me a email and i will be glad to contact you
Sincerly
J.

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T.R.

answers from Sarasota on

Hi D.,
Flordia Kid Care....I don't believe you can get turned down and its pay scale based so you may qualify to get it for free since your a single mom. At the most you pay $15 a month.

I'll being praying for you and your babies....:)You'll do fine I can hear the strength in your writing...your a fighter :)
T.

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J.P.

answers from Jacksonville on

You may email me...my email is ____@____.com

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S.F.

answers from Tampa on

D., have you tried qualifying for Medicaid? Depending on what your income is they will pay most or all of the medical expenses. You can contact them through the Dept of Children and Families.

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M.S.

answers from Tampa on

Sorry. If she is vomiting all the time and since she has asthma have you considered food allergies? Food allergies can cause a slew of problems that will go away once they avoid that food.

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M.K.

answers from Tampa on

Have you tried Medicaid.
And also did you appeal the Social Security decision. I used to work at a SSD/SSI representative's office, and you have to going, if you were not denied cause of income, then you should reapply and keep appealling the decision. It may take til you go to a hearing but if that iswhat it takes to get Social Security for your baby then that is what needs to be done.

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S.M.

answers from Tampa on

First let me just say that I applaud you. I am going to be a single Mom of one little boy on the way! You are doing great and please dont' give up. Have you tried applying for Medicaid? Being a single mother there is A-L-O-T of help out there you just have to look for it. Did you sign up for Healthy Start? They have lots and lots of resources that can help you. WIC as well. I hope this helps and good luck! You can do it~~

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R.C.

answers from Panama City on

Dear D. M,
I just love you. You are so real with thoughts and feelings. It is not easy to balance the catch 22 position of being caught parenting while being a working Mom also. It will drive you to early chill pill age. I was forced to make the choice that I wanted all along. I never articulated the thought until I had to leave the military with three small children. I dearly wanted to be a stay at home mom to my children. I had bought into the hipe of the American Dream. Being the Super Woman...doing more before 9am than most people do all day. I wanted the House with lawn, at least a jacuzzi bath tub. I wanted a clean house for my husband to come home to. I imagined dinner on the table by 5:30pm, a short walk or bikes after. Games, bed prep then alone time with the hubby, that is if he is not asleep before I am. And I wanted that paycheck in my own name that spelled RESPECT with SUCCESS. My health, the health of my children and aging parents caused me to live the reality of being lucky to cook one meal a day,then clean the kitchen the same day(somedays). I finally scaled down to a meal I could cook in one pot, clean bathrooms, observed what secret weapons were being unleashed upon my children that would trigger fevers or diarreah,eye aches and such. Then make sure mom & dad (85)made it to their doctor appointments, then make sure they too had at least one hot meal a day. We actually live across town from Mom & Dad. I have no real outstanding debt except for my mortgage, car insurances, utilities, grocery, health care and maintainance on a second-hand car. Nor do I have any 'extra money'. I save all year for springbreak vacation. I also start in January doing creative clothes shopping to beef up the wardrobes as Christmas presence. Collecting and making things for Christmas presence, baking for outside gifts for Christmas, birthdays and anniversaries. I even put trim on old bed spreads to make my bedroom look redecorated. The point is, I only have about 10 short years to spend with my children as children then their youth is no more. If I spend the time at home making cookies, finger painting, singing songs, then as teenagers we bond during the transition to advisor with a listening ear. Then our children will have that warm, confident, talking relationship with us into adulthood. We just must make the time for them NOW. Forget working. Take in a little babysitting, a little house cleaning or laundry, a little cooking for our neighbors and friends for a few extra bucks. We can always go back to work when they head out to college. Don't believe you need that much extra money to sell their childhood for fast food, missing science fair,missing music recitals, or staying at home with them until the fevers are all past. You only need a mother when you can't do it for yourself. After that you can pay someone else after you are grown. Mother is really needed about 10-13 years. After that, you really begin more of an advisory role. If you miss the early years or treat the earlier years like advisory years, there is too often more crisis than ordinary between 14-18. When we think about it, we really want that time as parents. Children don't care about designer sheets and room makeovers. They want love, hugs, patched quilts, friends over, time for them, homemade treats,parents who are availabe, unique outings with laughter and pictures. They will never miss the money. They will always think you did what interest you, and not because you didn't have enough money to do something else. Shut the world out at the sidewalk until it is time for your precious children to walk out the door and down that sidewalk to make their contribution in life. If you are too busy now, they are not going to discover their gifts while they are young enough to dream about taking on their roles from childhood. If they are 16 & 18 trying to find out what it is they are suppose to do, they are going to feel that you let them down. Scripture tells us bring up a child in the way he (she) should go. What is your child's natural bendt. They are no longer children at 12 and 13. They have become adolescent at that age. They should be moving into the second phase of who they are to become. The kid that want to be a fireman at 9 is deciding that she really wants to be a navy seal at13 and is trying to get into the earliest leadership course. Direction is set already. But the kid who is still looking for motherly TIME AND THEREFORE affection at 13 is too often also looking for some outside mentor and some influence to attach to in order to satisfy the longing within. Mother's presence helps the child identify that self satifaction is not found outside of themselves. They help to create the world around them that satisfies their creative abilities. Relax, you don't have to do it all by 35, if you are not parenting alone. But if you are a single parent, then cut your hours at least by one a day. MAKE daily routine the family tradition. Certain meals on certain days. Certain games or chores on certain days. One night family nite. But without question, go home and parent while your babies need you. Corporate babysitting and pass around health care from people who don't want to nuture you will not help to cure what ales MY CHILD. CRY ALL THE WAY HOME BUT GO Home and see about your children. YOU will be sooooooo glad you did. God means for you to parent a while and sleep at night and after middle age, rediscover yourself and make all things new in the career field after parenting. Love ya'

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R.P.

answers from Tampa on

You should look into HealthyKids insurance for you child. Check it out on the web...its a Florida state run insurance plan. http://www.healthykids.org/apply/

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