Is There a Mamapedia Type Blog for Parents with Children Who Has Autism

Updated on April 12, 2015
M.M. asks from Pittsburgh, PA
5 answers

If you know of one pls let me know needing advice from moms going through the same journey thank you

I found a ton of blogs but it's not a questions and answers-format like here thanks moms

What can I do next?

  • Add yourAnswer own comment
  • Ask your own question Add Question
  • Join the Mamapedia community Mamapedia
  • as inappropriate
  • this with your friends

More Answers

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

R.B.

answers from Dallas on

There are tons of autism support groups. They use to be on yahoo groups but just about everyone has moved to facebook. Some are great some are not just like anything else.

National Autism Association has local chapters across america. They host support groups and learning sessions monthly. http://nationalautismassociation.org/ to find your local chapter.

I don't know anyone with a child with autism that supports autism speaks after a few years. I wouldn't steer you there. They don't really help families they spend most there money on fundraising expenses and operating expenses and then fund a bunch of research that is pretty much it.

Are you looking for help with school / iep stuff? Are you looking for behavior management, treating the childs co-morbid medical conditions? Are you looking for neuro diversity groups? There is a big divide in the community and you kinda need to know where you are to know what type of groups to look for.

If you give me more information, I can help steer you to the right place.

There are lots of great blogs but that isn't where you will get questions and answers.,

I love the blog "Diary of a mom" It is beautiful though I disagree with her in a fundamental way however I follow her and love her blog. Her honest , humor, passion is compelling. I say I disagree because while I love her passion for acceptance and "prepare the world for the child" I believe in helping my child overcome his autism and preparing him for the actual world we live in. That doesn't mean that I don't teach people about autism every chance I get it just means I work very hard to help him overcome the autism symptoms so he can function in the adult world some day.

4 moms found this helpful
Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

R.K.

answers from Appleton on

Have you tried autisimspeaks.org? You might also find a meetup.com group for parents of autistics.

3 moms found this helpful
Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

P.G.

answers from Dallas on

Visit http://www.autistikids.com/resources.html. I created this website because several members of my family are on the autism spectrum.

There are links to lots of resources as well as blogs by autistic adults that will give you insight into what your child is experiencing from the autistic point of view. There are also blogs by parents. They may know of some question/answer sites, but what I've seen is that most parents find the input of autistic people most valuable because they have a shared experience. You can also ask questions if you read a post on a blog that you find inspiring or that resonates with what you're experiencing.

3 moms found this helpful

B.C.

answers from Norfolk on

Google this: 'blog for parents with children who has autism'

You'll find lots of sites.

1 mom found this helpful
Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

E.B.

answers from Austin on

I belong to several Facebook groups for families who are dealing with the medical issues that my daughter has. They are "closed groups". That means several things.

First, you must request to join the group. The administrators will sometimes look at your public Facebook page, just to make sure you're a real person, and that your Facebook page is not filled with obscene material, hate messages, etc. If, after joinging, you post messages that violate the group rules, you can be blocked from that group. I've seen that happen just a couple of times - one person was faking a disease for attention, and one was ranting against all medications and doctors and trying to bully everyone who sought valid medical help.

Second, you agree to abide by certain rules. Most of the groups have very similar and basic rules. They include: not trying to sell products to other members (posting links to something you sell as a business), not trying to push "miracle cures" or strange rituals that will "cure" anyone of anything ("my aunt's neighbor's ex-husband's stepson clicked on this link and his brain tumor completely disappeared the next night" kind of stuff), no harsh criticism or rude responses to others you might disagree with, no obscene or profane language, be polite, etc.

Third, group postings will show up on your Facebook page when you log on, but if a friend of yours logged onto your Facebook page, they would not see any activity from that group.

The groups I belong to are helpful, friendly, and encouraging. People ask questions about whether a certain medication helped, or how others take that medication, and they discuss healthy eating or foods that make the issues worse, and sometimes they just ask for prayers and good thoughts when they're hurting or scared or discouraged or about to have surgery, for example. I have learned so much from them. We're all free to ask questions and give advice, or just a word of support.

If you go onto Facebook, type "groups for parents of autistic children" and you'll see several. Some are "public groups" and those will be visible to anyone who looks at your Facebook page. Some say "closed group" or "private group" and you can go there. You won't see any posts, but there will be a link that says "request to join group". They'll reply pretty quickly, usually the next day. One group was called Parents of Autistic Kidz" and it was private.

I hope you can find a group. Their advice and support have been invaluable to me.

For Updates and Special Promotions
Follow Us

Related Questions