The Problem Is Back.

Updated on September 19, 2007
S.P. asks from Lincoln, NE
14 answers

My son has encoprisis (basically chronic constipation). I have talked on the site before about this. He takes Miralax which has been just wonderful. He went the last 2 months of the prior school year and all summer with less then 1 accident a month. He started school again the second week of August went 2 weeks with no problems and now is averaging 2x a week. Yesterday he had it twice in one day and I ended up bringing him home. Now today, he had yet another one and apparently sat in it quite a long time before getting cleaned up. Mind you yestersday I got calls from his speech teacher, the school nurse, the principal, and his regular teacher. 3 out of 4 just completely yelling at me aboout this to the point I was in tears. I have given a medical release to the school for anything involving the encoprisis but now they are saying that I need to release all medical info to them. My husband and I don't think they should get the whole medical file on him. There really isn't anything there but the routine things, but last year I had him go to a therapist about the problem and I think the conversations between him and the therapist should stay confidential.

I want to help him all that I can. I don't know what is causing this recent accident streak again. All I can think of is its something school related as nothing here at home has changed and as I said he hardly ever has accidents at home or any other home he is in (my parents etc.). I don't know what to say to the teachers, nurse, principal anymore. They basically called me a liar yesterday when I said he wasn't having accidents like this (over the summer) yesterday. If anyone else is going through this I would love to hear from you. I'm so frustrated. I'm a stay at home mom because of a back injury and we live about a half hour from the school. The school now wants me to come change him, or find someone else to do so each time he has an accident. I can't drive, I can't even ride in a car without taking pain pills ahead of time. Again, I don't know what to do there either.

They go on about how there is another boy at the school with this prob but he hardly ever has accidents so my son should be the same. Then they bring up how my daughter never had such probs. Sorry I'm going on a bit of a rant, I'm just at my witts end with this.

What can I do next?

  • Add yourAnswer own comment
  • Ask your own question Add Question
  • Join the Mamapedia community Mamapedia
  • as inappropriate
  • this with your friends

More Answers

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

J.O.

answers from Boise on

Hi S.-
I'm so sorry that you are experiencing this, but I'm even more sympathetic to your son. First of all, I would probably agree that something at school, whether it's as benign as being distracted to the point of missing the cues or whether something is happening at school that is triggering this regression.
That the school would blame you or not take your word is ridiculous. I'm sure the school is just concerned that some other issue may be going on at home for this to occur, but if he's not having accidents there, I'm sure that's not the case. Frankly, I would ask your doctor discuss the issue with the school nurse to clarify the situation. This way, they will have an outside, unbiased opinion on why this is happening.
As for releasing his medical records, don't do it. For them to even ask is crossing the line. Keep those matters private, it's none of their business what viruses, rashes, etc. he's been treated for.
If none of this helps, I would definitely consider switching schools. Your son should not feel bad for having a medical condition, nor should his teacher, principal, counselor, or nurse make you feel responsible.
I hope this helped a bit... good luck.

1 mom found this helpful
Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

K.S.

answers from Des Moines on

I too, Have a son that is 10 and he takes murlax daily, for the same thing, what happens is when they go back to school they tend to have more problems with constipation, and as it sounds gross, they have like a leakage that soils their pants, they will hold it because they can, and it causes that problem, and my son will wear his soiled pants and keep pulling his pants down over the back of his pants, I have to make him go shower and clean up and throw his stuff in the washer. alot of kid's their age do this, at school they will hold it, because they do not like to BM at school. and NO absolutely do not sign all of his medical information over to the school, only release for them to talk to the Doctor about this problem, you have that right! It is struggle, but it is a very common thing, and ask the doc maybe if he may be getting to much murlax, maybe go down on that, anyway good luck!

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

J.G.

answers from Billings on

My first suggestion would be to contact PLUK immediately to have someone explain YOUR rights to you. One thing the school will not do is explain what your options are. My child is also on Myralax. It is great but I have noticed that it can cause really soft stools and she can have problems getting to the potty. I am not sure if this is your childs problem but we introduced 2 fiber cookies a day along with the 12-17 grams of Myralax. One cookie in the AM and one cookie before bed. Seems like that is a much better fix. I don't know if your son has also had his intestonal tract blown out. That may need to be done if he is constipated. If you are not getting answers from your doctor here, I would suggest first that you definitely see a gasteronlogist if you have not and if you don't have luck here, try getting a second opinion from the Children's Hospital in Denver.

I would not provide anything to the school until you get some help from PLUK. They may even be able to direct to as to some help you could get with him.

Well I hope this information helps.

J.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

K.S.

answers from Sioux Falls on

Hugs to you,
My son has horrid constipation and the miralax is a godsend. Please don't release information to the school that they don't need. They gossip and they gossip with parents. Kids of those parents will here and spread all around school. Is there possibly a bully at school? Your son may benefit from counseling if there is a bully or for whatever. I don't know if they offer income based counseling there, but it may help. Especially if the grown ups he should be relying on are being mean to him at school. Good luck to you.

K.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

D.C.

answers from Iowa City on

I hear your frustration. My daughter has been going through the same thing this year. She is four.
I don't have any advice. The only thing I can think of is to continue talking with him and with the people at the school. I think you are right not to release all medical information to them. They have what is related to this problem.
Is your son still seeing a therapist? Maybe something happened at school that has brought this problem back.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

S.B.

answers from Boise on

S.,
I agree with all the other posters here, stand up for your son, don't give them his medical files its none of their buisness..
Mostly though I am wishing you luck
S.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

J.Z.

answers from Boise on

Hi S.,
If your child has special health needs the school should be bring in special help for him. They do provide extra staffing for children with disabilities. Perhaps there is a way you could get help from the school if his condition is caused by a disability......just a thought. You should have a talk with your doctor about it and work with him to get the school on your child's side to care for him during the time you are unable, especailly since it sounds as though you too are having health related issues. The school can get grant money to pay for a aid for your child. They would have to hire someone who would be willing to be at the school to help assist him to use the restroom or clean himself if he is unable to do it on his own.. that is their job to provide that care if he needs it while under their care. I hope this helps. You may want to go to the schools web page and look under how they care for children with special needs. The more you know about the workings of the school the better it will be for your situation. I hope this helps.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

C.M.

answers from Boise on

I feel for you. We are having the same difficulty with our son who will be 5 in December. It is so frustrating, then have other people "yell" at you for something that you can't control and yet is just as frustrating. This is what I would do if I was in you particular situation.

1. Talk to the superintendent for the school district. Let them know the problems that you are having at this school for a documented medical problem. If that gets you no where, go higher. They should not be comparing your child to another for the same medical problem, each child is different. ( Then to yell at you) Other parents maybe having issues with this school as well.

2. Let the MD and Therapist know what the school is doing as well. Sometimes Dr. will make a call to the school to back you up if you sign a medical release.

3. Do not release any information that is not related to the issue at hand.

4. FIND ANOTHER SCHOOL!!!! What heartless teachers there are at that school. If they are yelling at you, How are they treating your child? I am sure that they are being rougher on him than you. You and your husband may need to pay a little visit to the principal. Calling you a liar is unacceptable, I would be questioning their methods at this school.

Sorry, this issue has really got me upset, because this could be my child! I hope that it all works out and that they have not made the problem worse.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

S.C.

answers from Sioux Falls on

First of all I have to say that I don't know anything about this but I can give you some info into how to handle the school. Last year my daughter had a substitute teacher for a few days and when she came home she told me that this teacher had told her she couldnt use the bathroom during class. I asked if he had told the kids to use the bathroom before coming in from lunch and recess and she said that he didn't say anything to them, they are 8 year old kids that sometimes don't think to use the bathroom until the last minute! Would it help if your son was told to use the bathroom on a more regular basis? Is he holding it in because he doesn't want to ask to go then soils himself? I feel so bad for him! It is very demoralizing for a child to soil himself in front of other children and I am absolutely disgusted for the school being so awful about it! Is there any way you could home school your son? If this was me I would have a very hard time sending my kid to a school that was not understanding about a childs medical problems. Also, absolutely don't give them his medical files! You have shared the important info. with them and that is all they need to know! If I was you I would report their lack of understanding and failure to want to help a child that obviously needs it to the school board and get him out of there! There has to be somewhere else that would help you. Please let us know what you do and God Bless you and your little Guy!

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

K.Y.

answers from Cheyenne on

I would definitely look into changing schools- for 2 reasons:
1- apparantly your son is not comfortable there, and 2- NEVER put up with phone calls from the school where they YELL at you! You are the parent, not them, and if they are yelling at you, they are probably yelling at kids as well.
If you don't have other schooling options, then look into what it might take to homeschool your son. It isn't that hard.
It would be a lot less stress on you and your son no tot have to deal with that school's attitude and their behavior towards you is wrong.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

J.L.

answers from Omaha on

well wahat sdchool xchool does ur child go to. I think they only trhing they need to know is about the medical problem they r dealing with. If it is a public school i thoughall they had a school counselor that ur child can talk to there. I know they could do all that ur regular therapist does. I not too sure about all the workings of schools but i think they are just too intrusive. ____@____.com

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

T.T.

answers from Denver on

I don't have any experience with the problem your son has, but I just wanted to offer my support. I think the school is being ridiculous. They should be working with you and your son to help him, rather than against you and blaming you for the problem. I think you should consult a lawyer if this continues. I think it's probably a good idea for your son to see a concelor, too, because if the problem comes back when school starts then there must be some sort of problem that is triggering his accidents. And absolutely that should remain confidential. It should be up to you what the school knows about that. I hope you can come to a solution so that your son can have a good school experience, and I hope you and the school can work together. But seriously, if they're going to be so harsh with you, talk to a lawyer about your rights and most importantly your son's rights. I wish you the best!

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

K.R.

answers from Omaha on

S. -

You have rights and the school is very much so in the wrong! Your child should qualify for a Section 504 plan which is a federal program ran through the Office of Civil Rights for children in regular education. Your school only needs to know and have medical documentation that your child has a medical condition that interferes with an activity of daily living (if you really wanted to push it he could probably qualify for special education under the catergory of Other Health Impaired)it is their responisiblity - NOT yours to provide any accomidations (i.e. someone to change him) that he would need.

Your school does not need to have all of his medical records, and certianly not psychological records unless they are educationally related.

Best of luck to you on this - stick up for your son and your rights as a parent!

K.

Smallavatar-fefd015f3e6a23a79637b7ec8e9ddaa6

J.O.

answers from Boise on

Stand up for your childs rights!! Load up on pain pills and show up in their office, you and your son are in the right, They have to bend for you not the other way around. He is just entering first grade am I wrong? Going from a few hours a day to full time? That is very hard on a child, I had never heard of your son's condition so I looked it up and from what I have found it is not his fault, and would probably fall under the children with disabilties act, here is a good web sit to start with..
http://www.aacap.org/cs/root/facts_for_families/services_...
My son had learning disabilties so I know a little about it but not were it pertaning to physical issues, are there some learning issues also? Now here is the part a lot of parents are going to have a hard time with....release all his medical, that is the only way to make just how important the situation is, the school needs the full view, when it was first requested of my son I didn't get it either, having been in the system with IEP's and ect for the last 11 years I now know the importance. I am going to stop this here but please feel free to write me and if there is ANY way I can help let me know. There are a lot of options out there you just need to know they exsist.

For Updates and Special Promotions
Follow Us

Related Questions