my son who is 6 weeks was admitted into Dupont childrens hospt Sun night. Had an ultra sound done mon moring to confirm that he has pyloric stenosis. had surgry mon after noon and we where able to come home late tuseday night. has anyone else ever dealt with this? i feel lost on what everything is to happen.
the stangest part is that i kelpt telling my mom that something was wrong before he was born, Along with after he was and during last week when he was throwing up after eating.
Thank you for all your stories. I do seem to worry more over this one then i have done so in the past. He goes in for his surgen check up on March 3rd. But we seem to have spitting up with little distane at night and early morining and it can be up to 2hrs after a feeding. But he seems to be gaining weight. Only time will tell and Thank u again.
My nephew just had surgery at dupont also. He was about 6 weeks. You are very lucky that you came home so fast. My nephew took about 4-5 to get over the surgery. I wish you and your son well. I hope they helped him.
I understand what you're going through. My 2nd had surgery at 6 weeks too, but for different reasons. All I can tell you is that you will get through it. Pay attention to the docs and nurses. Don't be afraid to ask them to slow down and explain things. Be his advocate! With shift changes and nights without much doc access you are the only constant who knows about his care. My nephew underwent the exact same surgery a few years ago and is dong just fine.
My cousin's son had the same thing. He is now a happy, healthy 15 month old with no issues at all!
Larissa....that is so weird that you send that..my brother's son just had surgery for pyloric stenosis the other night..they knew he had reflux but he wasn't keeping anything down. You were lucky that he could come home...found out during surgery that they clip one of his organs...so we don't know if he is fine or not...they are going to try Pedyalite today to see if he can take it.
E.
A good friend of mine's son had this done in '02 when he was an infant. It was scary up to the surgery, but once it was done he was completely fine. This is pretty common in boys. And really no biggie. Both my boys had hernia surgeries too. I don't mean to downplay your worries, but I'd check this one off the list because you took care of it! Enjoy your little boy!
Both my oldest brother and oldest nephew (his son) Have had this. When my brother was diagnosed it was 1958 and he was almost dead. He has a scar down his belly that looks like a zipper. When my nephew was diagnosed in 1987 all they had to do was laproscopic surgery. Neither has had any lasting effects due to this surgery. I am glad they found it as quickly as they did. Any other kids you have will be screened. My kids were all screened but luckily none of them have it.
Hello! I know exactly what you are going through. My son was 5 weeks old when we found out that he had pyloric stenosis. He under went surgery at the penn state hershey medical center! It was horrible he could not keep a thing down at all, he would projectile vomit where it would fly way across the room. At first the doctor thought that we were over feeding him. But then they sent him for an upper G I and found he had pyloric stenosis. We were in the hospital for about 3 days prior to the surgery until we ended up at the hershey medical center! There he had his surgery and two days later we were home. But 1 month after the surgery we had noticed a lump where the incision was. We took him back up to be checked and little did we know back in for yet another surgery he ended up getting a hernia at the same spot he was cut open. So they fixed the hernia.And hadn't had any problems since and my son is now 11 years old!
L.,
I am glad that they caught it right away for your son.
When my daughter had pyloric stenosis, we thought that she had the flu. It wasn't until my mother in law suggested that it might be that. My daughter was almost 3 mos old when she was checked for it.
They told me it was hereditary and that if my husband and I had any more children that we should keep that in the back of our minds. When we had our son, every time he would spit up, I would think oh no here we go again. But he turned out not to have pyloric stenosis.
When I got more information about pyloic stenosis I found out that it is more likely in boys then in girls. For some reason my daughter had to be an exception. She is 10 now and you would even know that she had problems with her stomach.
My son had the surgery when he was just 2 1/2 weeks old. They caught it very early. He had a hard time eating afterward and keeping anything down, so he ended up in the hospital a full week. He is now 5 1/2 years old and has NO problems at all. He loves food, eats a ton, has no problems. If your baby needs surgery, which can be so difficult, this is the one... quick fix and then there are no problems. My only regret is that I knew I wanted to do some gentle scar massage on his belly after it had healed, but the surgeon and pediatrician said there was no need. As he got older, I noticed he didn't have great mobility of the skin there and mentioned it to another pediatrician who recommended scar massage! (I knew I should have done it from the beginning.) Other than that... he's perfect!
Hi L.! I know exactly what you're going through. My son had pyloric stenosis and had his surgery (laproscopy) at 4 weeks old (he was at CHOP). We were also sent home the next day. The little ones are so resilient - we were holding him so carefully but he never acted as if he were in any kind of discomfort even the day after the surgery! The recovery is so quick. My son wound up also having reflux and was on zantac for a few months after the surgery. The drs told me this was pretty common. (He was still spitting up after the surgery, but no more projectile vomiting!) He is now 16 months old and a very healthy boy. Best of luck with your little one and feel free to email me back if you have any questions!!!! S.
Yes! One of my triplet sons had this happen! He was 2 1/2 months old, but he was born 7 weeks early so when you adjust that it put him at about the same age as yours. If Pyloric Stenosis is going to happen, it's going to be at about 6 weeks old, give or take.
Pyloric Stenosis is when the opening to the stomach, a muscle, starts to close and the child can virtually starve to death if not treated. It is a simple fix. For us, they made an incision under the belly button, reached a finger inside to pull out the muscle, made a "cut" to open it back up, put it back in and used surgical "glue" to seal the incision. Such a simple procedure to save a life. Took a matter of minutes. They can eat as soon as they wake up. Immediate response!
Our problem was though, that our pediatrician kept saying that our "eating us out of house and home" triplet son had suddenly gotten reflux. I disagreed from day 1. I kept asking her what the symtoms were of reflux and everything she told me was the opposite of what my son was having. I kept calling her office almost daily telling her the yet another formula she changed him to was not working and that the symtoms did not match! See did mention Pyloric Stenosis in the beginning but brushed it off and said we would discuss that down the road. Weeks went by and by the time my son began losing weight and turning pale my husband and I demanded that they give us a correct diagnosis or we would take him to the hospital ER and go through those channels. He looked ill, like he was dying. My husband got in this woman's face for the life of his child and told her to help our son! She finally decided to let us get the ultrasound to see if he had Pyloric Stenosis. We went to the hospital and the doctor there was disgusted that the pediatrician let this go on for so long since the diagnosis was obviously Pyloric Stenosis. We sat there while this doctor called our pediatrician and laid into her like crazy! They called around to other towns within a 2 hour radius to find one that could take our son in the very night for surgery, it was that bad at that point. I stayed home with the other triplets and our then 9 year old. My husband took Jacob and our 17 year old for the surgery to a university hospital 2 or 3 hours away. He had surgery the next morning, and the next day he came home, on Christmas Eve, the triplets first Christmas.
The doctor called to talk to me about the surgery since I had to be so far away and told me that he could eat normally, as much as he wanted until he got back up to his normal amount. Jake was a huge eater before so it took him no time to eat what he was before, lol. He had no side effects and recovered in no time. They only thing we had to watch was the incision area since they used the "glue" and that healed nicely! He's 4 now and you can see the scar under his belly button if you look close, and it's now a bit of an "outie", lol.
If you have any other questions, feel free to email me. Your baby should be able to feed normally now.
K. B
mom to 5 including triplets
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As the other response indicated, you should expect no effects now that the surgery is complete. Both my brothers went through this in the 70's and no problems at all... healed up fine and you would never know. It is inherited so I had to watch my chidren for it - but just knowing to keep an eye out was enough.
I'm sure everything will be fine. It's more stressful just dealing with an event when you have a baby. Take care!
I understand what you are feeling. Well, I don't know exactally the effects your son's diagnosis will have on him.
My son was born with PPHT in Infants...well he wasn't born with it, it came about after he was born because of neglect in the Hospital. Anyway, I knew something was wrong with him and noone would listen to me until he almost died in my arms! He was in the hospital for a month...had to be flown to Philly.
So, when we finally got to bring him home...he had the same VOMITING ISSUES. Dr. says he's fine. He continues to have these issues, not holding the formula or breatsmilk down. He often had been lathargic and also wasn't gaining weight at that point.
Today he seems to be just fine, eatting solid foods. I haven't found anything on whether or not a child can grow out of the PS. He had all the symptoms, but never was diagnosed.
He is 11 months old now, and I see delays in him that could be due to his prior condition PPHT in infants or just that he is a boy and behind compared to his sister???
There are so many possible outcomes in his future and it is scarey.
The only advice I can give is...take the gift you were given and cherish it. Times wil be tough but, don't let them bring you down. Life is a wonderful thing with opportunities to love in many ways. Your son will show a side of you that you never knew you had in you:)
Hi L.,
Now that is behind you. You can move forward.
Good luck. All the Best. D.
