J.J.
hi L.; i just wanted to say that i bow down and worship you, you are amazing.
i do not have any experience w what you are dealing with so i have nothing to offer; however, if i'd have said anything, it would be that you should reach out to others, and never blame yourself; which you're already doing!
i can really tell from your posting that your love for your son and your husband is unwavering, n that's what matters most. it seems like you three are really tight and supportive, and that's what will get you through this. i hope you have a few good local girlfriends that you can escape with once in a while, too; with a great personality such as you obviously have, i'm sure it's the case.
and i want to also point out that the really amazing thing is that you are not making this into a life ending tragedy, which is what happens to a lot of parents when they find that thier child has a major challenge. the closest i can come to your sitch is that my sister, who is 14 years older than me, is a significantly disabled person, from birth, and my mother really let it destroy her life a lot of the time; as the second child, i was under pressure to fix it, some how, and also ignored a lot; because my mother was so consumed with guilt and dismay that she couldn't parent effectively; but that is NOT happening to you. you aren't going to be perfect all the time, but it's clear that you know that, and it's also clear that you really are supporting yourself and not getting into the blame and drama that can turn something like a psychosocial issue into a family-destroying disaster. cheers, big cheers, and kudos, to you.
i hope you wil have more children, we need more moms like you putting more loved, healthy, powerful children, like your son, on this planet.
J.