Hi B.,
I am an occupational therapist & have worked with numerous patients who have had neck & back injuries so I can give you some tips on how to protect your neck & hopefully alleviate a little pain while you're figuring out a full diagnosis & medical plan. As a disclaimer, without knowing your full medical history, I can only give you suggestions that I give to some of my patients with neck injuries so check with your doctor to see if they will apply to you. First of all, take it easy & keep your neck in a neutral position as often as possible. Now is not the time to exercise or do anything strenuous (again, unless your doctor or another medical professional advises it for your condition). My father-in-la actually had a similar problem & it was a lot better after his surgery.
One of the big things I tell my patients is to avoid "BLT" which stands for bending, lifting, & twisting. Avoiding bending your neck includes shifting your head forward like when you brush your teeth or eat (bend more at your waist than with your neck or bring a cup to your mouth to spit with toothbrushing rather than leaning over to spit into the sink). Also, minimize how much you shake your head back & forth (for example, to say yes or no, or just to flick your hair away from your face). Don't lift anything heavier than about a gallon of milk. This is a big challenge for people with little kids, or childcare providers such as yourself. Any muscle straining by your arms can pull on your neck muscles which could potentially cause further problems or at least pain. Plus, there's always the chance of dropping whatever you're carrying if you should happen to have a spasm so you wouldn't want to do that if you're carrying a child. As for twisting, driving is a huge no-no for most people with neck injuries. I know it's possible to drive without turning to look behind you but it's really not safe at all, for your sake, those in the car with you, or other drivers or pedestrians. Please, please, please don't drive until you can safely turn your head around quickly to avoid causing an accident (or worsening your condition)--think of the horrible DC area drivers! Try to think of your spine as a log & keep your ears above your shoulders at all times so don't shake your head no. To get in/out of bed, try to not come straight up but rather roll to the side & then push up with your arms as your legs go down to the floor (this is called log-rolling). Speaking of being in bed, make sure you're not using a big pillow, because that can cause you to bend your head forward or to the side too much. Just make sure that your head is as straight as possible, no matter what position you're in (pretend you're a model & look straight ahead). Another thing that I tell my patients is to minimize how much you lift your arms above your head, especially one at a time (doing both at the same time is often somewhat better because it's symmetrical). Keep this in mind when you're getting dressed, washing/combing your hair, etc. Have anything you regularly use in cupboards put in shelves that are easy for you to reach & not way up high or down low. Same with things in the fridge & always keep in mind if you're bending/lifting/twisting when you're grabbing something.
Let me know if you have any other questions about things like this to make your life a little easier. I don't know any neurosurgeons other than those at the hospital where I work, but I can provide therapy advice if you'd like. Good luck & take care of yourself. If you overdo things, it can cause problems for the rest of your life so take it easy as much as you can, at least until you get a full work-up & know what's going on. I don't want to scare you with this information, but I want to give you something since it sounds like you've been getting the run-around by your physicians.
--J.C.