Seizures and MORE!

We are going through some of the same things you are right now. I completely agree that you should get a second opinion. I did not like the doctors at Children's either. We saw a neurologist at Medical City for the same reason you did (because Children's couldn't get us in for 3 months). We are also going to see a neurologist out of Plano as well. I am anxious to find out more about my child's diagnosis and want to get the same answer from at least two doctors. Good luck!

Cari,
I am a mother of an 8 year old daughter who has had every kind of seizure all of her life. We started out at Medical Center Dallas and were not real satisfied. We have now been at Children's for about three years. Seizures are a very tough condition to diagnose and treat. It is very confusing and frustrating for the parents and treating medical professionals. You will find that the medical people are often just as confused as you are. It is very important to find neurologist you like and are comfortable with. Stay tenacious and fight for one who gives you what you want, answers your questions and is available to you. I know several at Medical City and at Childrens. Ask me. I will give you my opinion on them. I also know several other moms and kids around the metroplex (mostly north Dallas/Plano/Frisco area) with seizures. We have kind of a email support group. Email me. It is good to talk/email each other. We need to stick together. We have been through a lot. You are just getting started on what may be a long journey. I am glad to listen and support. I have been where you are.
K., mother to Gillian

My sister was 9 when she had unexplained grand mal seizures, probably brought on by a high fever and over the counter medicine I gave her during this fever. She was taken to the hospital and was never really diagnosed. She had 2 more episodes of the grand mal seizures and numerous episodes of the "zoning" out type. The doctor put her on Tegretol until she reached about 12 years old then she was off of them and never had an episode since. She is now 35 years old. Her doctor said it could have been too much brain activity and she just grew out of them. I hope this is your case as well. It can be pretty scary.

Well first off you need to tell your doctor about the "mini" seizures because there are types of seizures where the person completely zones out. I believe they are called absent seizures, you can look online at webmd or other medical websites and it will give some information on different types of seizures, their symptoms, and the treatments available. I would definitely talk to the doctor about these seizures and ask what tilting the head could mean. I have no idea if any of those mentioned problems with the decreased white matter or pituitary cyst would cause the seizures, but another doctor's advice won't hurt in addition to the two opinions you already have. Just keep in mind they may give a totally different opinion. I know it must seem overwhelming and scary, but you're doing what you can to figure it out and that's the best place to start. Good luck!

I am so sorry you are having these issues with you daughter. My kids both have neuro issues and even though we are in Dallas we go to Cook Childrens in Fort Worth where I have found a wonderful neuro. I have been to CMC in Dallas and did not have a good experience with neuro - they could not even find why my son was passing out and really didn't try (he had a brain injury)and they had no clue about the disorder they both have and told me it was not of interest to them. You might want to take you films (make sure you always get a copy of the reports) and take her to Cooks. Best of luck to you.

HI Cari,
Here is a link for some information on chiropractic for the pediatric population. It's always better to be more informed as a parent, especially since you also mention the head tilt. If the upper portion of your baby's neck is not moving properly then that could lead to an array of things and her nervous system will be able to express itself as it should. http://icpa4kids.org/research/chiropractic/epilepsy.htm

If you have any questions feel free to ask. Also worrying is natural especially when it comes to our kids but keep in mind the little one you are carrying. That extra stress takes a toll on him as well.

Have you ever thought about taking your daughter to the chiropractor for an adjsutment? It is worth a shot. I treat alot of patients for seizures. It helps. Did you have your child vaccinated? If so do you think the seizures and white matter in the brain are from the vaccinations? (disease, mercury, lead, aluminum, etc. in the shot)

My heart goes out to you. Call Dr. Lana Petrunin. She is a naturopathic doctor in Frisco, Texas. She is originally from Russia and has extensive knowledge how the body works and how it heals from inside out without medication. She is certified in nutrition and Iridology. I think she can help you. Her nbr is ###-###-#### She is very busy and booked up. Tell her that Y. Fischer sent you. Sending you all the best for your little girl.

Cari,
Good morning and blessings to you and your family.
When you go to the doctor, ask for a CRP test, the C-ReActive protein test, this test show how much inflammation there is in our body. and all disease start w/inflamation.
Ask the doctor about XANTHONES.
these are powerful antioxidants, they are found in plants and foods, they are phytonutrients.
to learn more or the science of this, go to www.pubmed.gov, the National Library of Medicines and enter xanthones in search
also, go to www.theWholeFruit.com and click on research.

I can send you some testimonies on how these xanthones have helped other persons w/seizures.
all drugs have side effects, unless you are allergic to strawberried, this fruit made into a juice has NO side effects. this is not a drug, it is a food.
read more on www.OliviG.WhyMangosteen.com
email me and I can send you testimonies or doctors audios.
____@____.com

You are in my prayers.