Starting Solids with Cleft Palate

Updated on June 10, 2009
K.B. asks from Milwaukee, WI
4 answers

I will be starting solids with my son, next month. He was born with Cleft Palate and isn't getting it repaired until he's almost 1 yr. I'm looking for tips and suggestions on feeding techniques, to help make the transition to solids easier for my son. I have my plan on which foods I'll be starting with, I'm really only concerned with "how" to do it and different experiences that moms may have had. Any ideas are welcome and appreciated.

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N.R.

answers from Des Moines on

I went thru this with my (now) adult daughter and she lived with us when her son (with a cleft palate) was born, so I've been thru this twice. They both had clefts of the soft palate only, and no cleft lip. I found that bottle feeding them as babies was harder than giving them solids. I know this sounds strange. When I started them on small solids (to begin with) they were somehow able to swallow it with their tongues and it just went down without coming back up out their nose (like liquids did). With liquids or a bottle, they had to suck, rather than use their tongue & throat muscles. Without knowing the extent of the cleft, I would start out with small, soft, solid foods (canned fruits cut up small, etc.)and see what happens. Be prepared that he may not like the texture of solids at first (nothing to do with the cleft), just like many non-cleft babies do. There are Cleft Palate support groups (go on the Internet), also. My daughter had her one and only surgery at 17 mo., and her son had his one and only surgery at 15 mo. Both were very successful with no speech or other problems later. Both surgeries were done at Denver Children's Hospital, where we lived at the time. We're now in West Des Moines.

I forgot to mention that you start him the same as any other baby, with a spoon, or let him pick up his own small pieces off the high chair tray, etc.

Feel free to contact me with any questions.

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K.H.

answers from Minneapolis on

they do make bottle feeders-used them on my kids..

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K.S.

answers from Minneapolis on

Hi K.,
I don't personally have any suggestions, but I own an on-line store which is for kids with special needs and disabilities, so I speak with parents all over the country.

You might try this website: https://www.bigtent.com/groups/smiles2009

It is a support group for parents. I'm willing to bet that you'll get tons of information about feeding and most anything else you need.

My son, Joseph, has Down syndrome and I can't begin to tell you how invaluable our parent group is. You don't need to reinvent the wheel and figure it out by yourself. Other parents are more than happy to help you out and I'm sure at some point, you'll find yourself in the position of helping another new parent.

Good luck with everything,
K.

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