Teenage Boy with Seizures

B.,
Although I do not have a son with seizures, my ex-husband had them when we were dating in highschool through college. I can tell by my experience the more open and honest he was about it with his friends the more support they gave him. He had several around his friends and because of his openness, they new exactly what to do and were very understanding as to what was going on and got him the help he needed. He was able to wrestle and play football all throughout his school years. He has continued with his meds and is now 42 years old and has been seizure free since 1997. My ex-husband has had a completely normal life and continues to thrive through adulthood. Good luck and best wishes.

Hi,

My sister had them and last year my daughter.Osteopathy worked in both cases and my daughter takes regular magnesium supplements - mineral deficiencys are one contributing factor.STRESS is also very large - but my daughter did not have another one after the osteopathi treatments and my sister who was having grand mal siezures began to recover after the osteopathic treatments.Under Ca law insurances are required to reimburse for osteopaths beacause they ARE medical doctors. Thier was an article recently in Alt medicine magazine on this as well. THe Dr my daughter saw was Maude Nerman in San Rafeal.

All the best,
R.

We have a few people with siezure issues that they have gotten huge relief from. Please call A. ###-###-#### if you would like to talk to them.

I can put you in touch with my friend whose teenage son had seizures, but he has been on a nutritional supplement for the past few years and has no more seizures. He is also disabled and is now doing many things on his own that he was not able to do. Please call me at ###-###-####.

E.
California

Hi B.:
I asked my friend whose son has seizures once in a while. His case from your friend's case may be different. Please read ahead what she advised:

>C.,
>Since Damon is also developmentally disabled and started having seizures at puberty, I would suggest we might have different scenarios. I rely a lot on Damon's neurologist, Dr. Robert Calmes and we qualify for help from Central Valley Regional Center for his disability.
>I have never checked out any organizations for epilepsy, but do know they are out there and that would be the best source for help and comfort.
>Let me know at the next meeting if any of the above was helpful.
>Sharon

>>clau mart <____@____.com> wrote:
>>Hi Sharon:
>>From: B. E Date: Wed. Feb. 27, 2008
>>I have a friend with a teenage son with seizures who is >>looking for someone in a similar situation >to connect with.
>>I remember about you, and wonder how you dealt with it with >>your son. Please let me know.

>>C..

Another resource - based in SF - is Support for Families of Children with Disabilities. They have a parent mentor program for parents to give and receive support from other parents.

You might try Parents Helping Parents. They are a great resource and have a group for Seizure disorder. They are located in Santa Clara on Olcott St.
Good luck!

B.,

Check for listings in your area for regional centers. They may have resources for your friends son to connect with other children.

These regional centers may also be a great source of help for the mother as well

N.

There is an active support group for parents of children with seizures at Parents Helping Parents. The website is http://www.php.com/support/seizure The phone number is ###-###-####. there are a number of parents on staff there who have children with seizure issues.

J. Jaeger

HI B.,
I dont have a son w/ seizures; but I have them. IT started when I was 18 and I am now *ahem* much older. IF she wants someone to chat with, she can email me at any time.
Thanks!

It would help if you could say what kind of seizures he has,how many a day, is there a cause or onset of these seizures???? My ex son-in-law has complex seizure disorder, which means he has many different kinds, different longevity of each seizure etc. However, my ex sis in law has a regular epileptic disorder. More info please,,,,,

Hi B.. I have a teenage son with seizures - diagnosed with them at 5 y.o. but they are changing now that puberty has come on. If your friend would like to e-mail me, she can. My e-mail is ____@____.com.

L.