~Do Any Other Mommys Here Have Systemic Lupus, RA, FM or ITP?~

Updated on January 09, 2007
N.F. asks from Roseburg, OR
6 answers

I was wanting to see if any of you moms are fighting Sytemic Lupus, RA, FM or ITP? I have 4 and I am needing so advice. I have a specialist in Eugene who is my docter for pain. The thing is he did a bone scan of my spine to find out I also have "Degenitive spine disease". I start on the 12/27 steroid shots into my spine. My thing is though I don't want to take a lot of pain narcotics for my FM, RA, and spinal pain. I am looking for anybody who might have herbal suggestions. My doctors assistant said that he might be something to look into. So please write back if you have any good herbal ideas. Thank you & God Bless...
~N.

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T.Q.

answers from Stockton on

I do not have this, but I think I have something that may help you..

My name is T., and I am a stay at home Mom as well, and a distributor for a wonderful health drink called MonaVie. Its made up of 19 different health promoting fruits. The main fruit is called "Acai Berry". Studies are showing that the Acai Berry makes our bodies do what they are naturaly supposed to do. It not only helped me, and my family and friends (thats why I became a distributor because I wanted to help as many people I could), but many people that have different types of ailments. I bet it would help you. Its amazing! I am very passionate about MonaVie because how it helps people and also the company gives back to children in Brazil. Called the M.O.R.E foundation. I would love to tell you more about MonaVie and the health benefits. You can contact me at: ###-###-####, ____@____.com or check out thegreatproduct.com/tina_quintana. Take Care, T. Q

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G.V.

answers from Las Vegas on

Hello N.,
I would like to respond to your message. I am a chiropractor in Las Vegas and would like to give you some alternatives to treatment. I do not know how advance and/or severity of your SLE, I don't knwo your age but I assume you're in your late 20's early 30's since that is the predominant age for Lupus. Your degenerative spine disease is probably a result of some of the medication you are currently taking. When a person is taking steroids the body looses more calcium therefore causing some spine degeneration. The shots are to decrease some of the pain but will not help on the degeneration. That term is also very vague and everyone sooner or later gets some sort of denerative osteoarthritis. My recomendation would be to seek out the help of a chiropractor to help you with your musculoskeletal problems. Of course, SLE can not be cured and you would have to continue your care with your doctor but at least some of your pain can decrease. I have never heard of anyone having all of these 4 conditions at once. I would definetly seek a chiropractor's treatment. God Bless and if you have any questions you can email me directly at ____@____.com

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C.O.

answers from Seattle on

Check into MonaVie. It is an all natural juice, no chemicals except for a trace preservative, no caffeine, just pure fruits. However you can get the Active version that has added glucosamine, but they don't want you to drink that if you are allergic to shellfish. It has helped so many people in so many ways, to include lupus and FM (I'm unsure of your other issues). Please look in to it and I can also send you more info if needed, just contact me. Go to www.mymonavie.com/carolynosborne Click on "my story" and then explore the rest of the site. If you have problems getting on the site contact me. Also, children can drink MonaVie. It's juice and it tastes great! The main ingredient is the Acai berry. And MonaVie has the patent pending on the way they process it. You cannot get a more pure or powerful amount of acai in any blend. Any questions, just contact me! The wonderful thing about MonaVie is being able to truly help others!

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J.B.

answers from Seattle on

My stepmother has degenerative spine disease and I am also a medpro. If there were anything she could have found herbal or anything I knew of herbal I would tell you but PLEASE remember to take your pain seriously and don't put yourself in a bad position as a mommy. You are not a bad mom if you have to take meds for your pain. There are also sinthetic drugs that aleviate with little side effects. I may have other suggestions if you'd like.

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A.T.

answers from Seattle on

My name is A., I'm 26 years old and my son just turned two at the end of November. I had JRA which I was lucky enough to outgrow, but still struggle with stiffnes and the significant difference in the length of my legs, which causes my spine to be out of line and my hips to constantly go out of place. I also have fybromialgia, chronic migraines and nausea as well as a pain amplification disorder, allergies, and asthma. I was misdiagnosed as having lupus when i was fifteen and was treated for it for years. I struggle with the chronic pain and also a sleep disorder, probably caused by sleep apnea. I'm so glad to hear that you have a good dr. it's so hard to find somebody that understands. As far as medication, I personally do have to take a regiment of pain medication to be able to remain functional. It's pretty hard and it's not my first choice, but I do what I need to be able to function and take care of my family. Even the pain medication doesn't help me deal all my pain and symptoms so i do try other things. Glucosamine chondroitin has been helpful to both myself and my mother, who suffers from severe osteo arthritis. We both also take the antidepressant Effexor at a very high dose. It helps treat the extra-articular pain and somewhat manage pain in general, as well as the added side effect of helping with the depression that can come along with chronic pain and illness. Also I have found that a physical therapist can be very helpful. They have many ideas for dealing with pain. They use ultrasound therapy and tens units to treat pain and relieve muscle tension. My father, who broke his spine many years ago and has suffered chronic pain ever since had a portable tens unit, which uses small doses of electrical current to help block the pain sensations to the brain. He could clip it to his belt and move the sensors to different places on his back throughout the day as his needs changed. Also physical therapists can help you design a good exercise and stretching program which can help you prevent and manage pain. You don't have to go to physical therapy forever, but they can help you get started and monitor your progress so you can learn to pace yourself and not push to hard, but do just enough to help. Excercising everyday and stretching make a huge difference in with my fybromialgia. If you talk to your Dr. they should be able to refer you to a local therapist who can help you set up a fybromiala maintenance home program, or whatever is best suited to your needs. Swimming is a great exercise for me because it's so low impact and doesn't irritate my joints or aggravate my back, and the hot tub is a great treat and the heat helps the pain. Thermacare heat wraps are pretty cool too. I've always found heat soothing and they work for eight hours, go wherever you go, have no cord and don't burn you if you sleep with them on. Alternating both heat and cold when your back is bad can really help. The two other things you might look into are massage therapy and acupuncture. Physical therapists will often incorporate massage therapy, you dr can also give you a referral and many insurances are starting to cover at least fifty percent of the cost. There are also massage schools locally who offer low cost massages by students. I haven't personally tried acupuncture, but my older sister who has multiple sclerosis as well as several other pain causing conditions, swears by it. She also takes mega doses of pain medication but says she doesn't know how else she could deal with the pain the medication doesn't take away. I know i gave a huge list of information but I have been dealing with these issues personally since I was nine years old and obviously have family who struggle with health and pain issues so I want to give you all the info I have picked up and have learned from others. If you have any other questions about anything I said or if it doesn't make sense let me know. It's not a good pain day for me. Good luck to you and god bless you for looking for alternatives to pain meds and keeping your head up. Happy Holiday's.

A. B. Teeter
____@____.com

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N.S.

answers from Bakersfield on

Hi N. F... I'm N. H.
I have systemic lupus (diagnosed at 20, am 31 now), fibromyalgia, cervical stenosis, etc, etc. I'm also married for 12 yrs and have 2 children.
I am in pain management since I refuse to routinely use steroids. Pain management has been amazing for me! It's actually given so such back to me (like the ability to take my kids to school and not cry w/every step) but it's only one part of my overall treatment.

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