My Son Was Just Diagnosed with Scoliosis

Updated on February 05, 2016
L.U. asks from Kirkland, WA
11 answers

My 13 year old son was just diagnosed with scoliosis by his pediatrician. He has sent us off to a specialist at Children's Hospital and we have an appointment in a couple of weeks. I (internally) freaked out when he told us, but after talking with my cousin and SIL, who both have scoliosis, I am feeling a little better!
Anyone else have a child who was diagnosed with that but it hasn't affected them at all? His ped said that we will be visiting the specialist to get a bunch of x-rays taken and then back every 6 month-ish to make sure that there is no change. He is concerned because he is still a very young teen, so he has a lot of time where things can change.
I am concerned. He is VERY athletic, plays on a traveling soccer team as well as just making the state team. He would be CRUSHED if he couldn't play. We will see what the specialist says, I am just curious about other people out there!
Thanks mamas.

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O.H.

answers from Phoenix on

I have had scoliosis my whole life as well as spondylolisthesis. I remember going to the chiropractor as early as age 3. That has always helped me. I had a friend in high school who wore a brace for a few years. Everyone is different so you won't really know until you see the specialist. Good luck.

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T.R.

answers from Milwaukee on

Scoliosis is a diagnosis that has varying degrees. Essentially it is a term to define a curvature of the spine, but what causes that curvature, and to what extent the spine curves will play a large part in determining the type & level of therapy.

I was diagnosed with mild scoliosis, not requiring any intervention, when I was in high school. As an adult, I don't have any significant issues with it - I am not blocked from any activity as a result of it. I do pay special attention to my posture to make sure I don't exacerbate (make it worse), because the curving does make my body prone to using the muscles on one side of my body a bit more than the other.

There's a lot of information online about scoliosis - it might be a good idea to read through a few sites such as Mayo clinic. Try to stick to factual information from medical professionals, as opposed to anecdotal information from other people's experiences at this point. It will help you familiarize yourself with some of the terminology, causes & treatments, so that you can have a meaningful conversation with your son's specialist @ his appointment. There is also some information you can have written up ahead of time to bring with you. Good luck! T. :)

http://www.mayoclinic.org/diseases-conditions/scoliosis/b...

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N.B.

answers from Oklahoma City on

One of my girls friends has it. She takes ballet and other dance classes to help strengthen her core muscles and it helps her with her back too. She still has to go to appointments but she's doing well.

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E.S.

answers from Boston on

My daughter has scoliosis. I won't lie, it did get worse as she grew older. At 20 she still goes for check ups. But--- it has not ever slowed her down. She swam on a team until she aged out at 18. And now she is a dance major and dances many, many hours a week. She skis, she luges, she's an archer. She does everything and doesn't let it bother her.
Oh, sometimes dresses lie funny down her back but I don't think your son will have that problem.

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J.C.

answers from Philadelphia on

My husband was diagnosed with scoliosis. He did the exercises the doctors prescribed and his spine straightened out. He actually lost his diagnosis.

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K.C.

answers from Denver on

I have scoliosis. My sister, mother, grandmother and all 3 of my kids have scoliosis. It's seriously the *least* of our worries. I wore a brace (only at night) for 4 years until 9th grade. I was an athlete all throughout. Didn't affect me one little bit. My youngest wore a brace for two years (20hrs a day). She took it off for tennis, sleepovers, etc. She did wear it to school. It also didn't affect her one little bit. But it DID prevent her curvature from getting any worse (actually, in a pretty rare case, her curvature got BETTER because of the brace - doc said it happens but not too often).

Anyway, it's just something you deal with if you have to. Hopefully the curve won't get any worse or get to the point where he needs a brace. But even if he does, it's just a minor thing in the grand scheme of things. Don't worry.

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T.D.

answers from Springfield on

i was diagnosed at 17 with it. they took xrays and i have never heard another word about it.
now at age 32 i will have a knot like pains on the right side and when i ask dh to work the knot out he will comment that it looks swollen because it sits differently than the left side but thats it. no other issues with it.

i played sports in school too, volleyball, cheerleading and softball. never caused an issue with any of that.

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K.F.

answers from New York on

My best friend's husband has it. He played all kinds of sports as a teen and into his young adulthood. He is now in his 60's and has other health issues but all of them are not from the scoliosis but to his lousy eating, drinking and smoking habits.

Find out as much as you can. Help your son get information too. Perhaps he would find it helpful to talk to someone around his age who is dealing with it too. Instead of focusing on what he may not be able to do, why not concentrate on the things he can do and move forward from there.

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E.B.

answers from Beaumont on

If it was never on anyone's "radar" then it has to be an extremely mild case. It clearly has never interfered with this life thus far right? If it were me, I'd hear what they say at the appointment then take him to a chiropractor who deals with it and compare notes. It'll be okay, TONS of people live with scoliosis and just go about their normal lives. Hang in there!! Cyber hugs!!

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D.N.

answers from Chicago on

My son was diagnosed when he was about 10 with a mild case. His spine just very slightly curves. It has not affected him. He does not play any sports, more of a computer and science and history buff and he has hemophilia sop sports are kind of out for him anyway. At least competitive sports. He has not had any issues though. I would wait and see what the actual diagnosis is. I also know another person that had a mild case when I was in high school. She had no problem and was on a softball team, as well as ski and another that I cannot recall.

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M.P.

answers from Portland on

I was diagnosed with scoliosis in my late 20s back when the didn't do anything about it. My spine curves to the left making my left arm longer. Tops tend to skew to the left. I carried heavy sacks for work and was careful to carry them on my right side.

I think mine may have been caused by carrying my school books in my left arm and carrying my much younger brothers on my left hip as a child. We didn't use back packs tho my Mom wanted me too. Lol it just wasn't cool in the 50s.

My 15 yo granddaughter has mild scoliosis. I think it's caused by carrying her heavy back pack on the same shoulder. She now puts the straps over both shoulders.

Young backs are flexible. Mild scoliosis in young people is easily straightened. Some extensive scoliosis can be corrected with surgery. Your son is young. Scoliosis won't be a problem for him. There's time to correct it.

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