Need Info on EB Epidermolyosis Bullosa a Rare Skin Disease.

My newborn grandson has been diagnosed with EB or epidermolyosis bullosa which is a rare skin disease causing blisters from friction like diapers rubbing the skin etc. Babies with this disease don't crawl for very long because of the blisters it causes on their knees. It is so sad and I have never heard of it before . My daughter in law has it and it is a dominant gene.Her two daughters(from another dad) also were born with it, one has it more severe. My son and her were hoping their child would not have it but he does. My daughter in law is an awesome mom and knows how to treat it etc. but it can be bad because the blisters it causes are so susceptible to infection. People with this disease can't wear bandaids on the blisters because they peel the skin off. The blisters have to be popped, covered with ointment and wrapped with gauze. I would like to know if any of you have any knowledge of this disease. Thanks wonderful moms.