Hi E.~
I have 2 children: 8 year old and a 10-month old. 5 weeks ago I was diagnosed with cervical cancer. It was caught early. The gynecologsit oncologist wanted to operate asap and so I had a radiacal hysterectomy (everything including ovaries and lymph nodes) on August 26. I am 4 weeks post surgery and no chemo or radiation necessary. Thank God.
I, too, was very worried about what to expect. I got on a website called www.hystersisters.com which has a lot of information. First off, you need to plan on resting post-op for the first 2 weeks with another 2 weeks of easy living (total of 4). My mother-in-law came in to town to take care of me and my family for 3 weeks (could have used her for 4). I was tired all the time and told to expect that. (Two women told me that they got their energy back at the 8-week mark). Important not to lift anything over 10 lbs., so you should plan on a support sytem for the kids so you can rest and heal. You absolutely must take care of yourself through this.
The surgery went well and I was in the hospital for 4 days. You will be kept on great pain meds. I was opened up from my belly button to my bikini line. (The doc wanted to check out other organs and make sure the cancer had not spread.) Lots of staples on the outside and was told many many stitches on the inside. I had to wear a bladder bag (catheter) home for the first week. That wasn't too bad at all. When you've had an organ removed so closely to the bladder, sometimes it gets bruised. Wearing the catheter protects it by allowing it to empty itself whenever it needs to.
I asked my doc about putting me on some estrogen. I was afraid of going into instant menopause and hormones were prescribed to alleviate that.
Honestly I was very fearful about the whole journey. I'm looking back and realizing it hasn't been that bad. I'm kind of impatient about getting my energy back and have to remind myself that it is what it is. I'm also finding myself feeling very sad sometimes. For me, it was the whole "you have cancer" diagnosis and rush to surgery thing. I am grateful to be alive! I must admit that losing my uterus felt kind of sad. I'm 39 and done having children, but the choice is no longer mine and I've had to make some peace with that too. But on the other hand, remember there is much to celebrate. You have 2 beautiful children and will no longer have to suffer from pain of POS of endometriosis. My friends who have had hysterectomies talk about how wonderful it is to never have a period and all the benefits that come from that!
E., you will be okay my dear. I encourage you to get on the hystersisters.com website which was designed to be encouraging and positive. They also have a free booklet they can send you which I higly recommend. I refer to mine daily about the questions or concerns I may be having. Please, I also encourage you to write me with any questions or concerns you might have.
It will be okay.
Take care,
A.